Patients and Families

View the full IFOPA YouTube library where we publish all IFOPA and FOP videos. 

FOP Facts and Insights

This 15-part video series offers an abundance of information and advice for people with FOP and their family members, physicians and caregivers. Produced in 2009, the videos include information by Frederick Kaplan, M.D. and Dr. Eileen Shore, Ph.D. of the University of Pennsylvania School of Medicine, as well as IFOPA community member Lori Henrotay, who helped produce the videos for the organization.

1. Series Overview
2. What is FOP?
3. Clinical Features
4. FOP Misdiagnosis: Issues and Consequences
5. Treatment Guidelines and Considerations
6. Pain Management
7. Special Medical Considerations
8. FOP Gene Discovery
9. The FOP Research Lab
10. Collaborative Research
11. Pregnancy
12. Anesthesia
13. Hearing Impairment
14. Piercings
15. Preventative Oral Hygiene