Patients and Families
The IFOPA Emergency Medical Information Card
The card is laminated, fits in a wallet and contains the following information:
- FOP Treatment Guidelines for use in an emergency situation
- Contact numbers for doctors
Request your Emergency Medical Card by emailing [email protected]. Please include your mailing information. You can also download the PDF to print cards at home.
Versions of this card are also available with regional support information for the following countries/regions:
- Australia
- Canada
- Finland
- France
- Germany
- Latin America
- Mexico
- The Netherlands
- Norway
- Brazil
- South Africa
- Sweden
- United Kingdom
To request the PDF or a hard copy of a regional card please email [email protected].
- Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- The Advocacy Series
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
-
Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back-to-School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Special Needs Financial Planning
- Age Specific Tips for Navigating School and FOP
- Resources For Physical and Occupational Therapists
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- Ability Toolbox Program
- FOP Family Gatherings
- Resilient Living Program
- In Remembrance
- The Harold and Elaine Kaplan Quality of L.I.F.E. Awards
