February FOP Caregiver Support Group
Tuesday, February 17, 2026 at 12:00 PM Eastern Time (US & Canada)
The Caregiver Support Group meets monthly from Noon to 1 pm ET / 18:00 to 19:00 CET.
Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.
Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.
Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.
Due to the conversational nature of this meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.
February FOP Peer Support Group
Tuesday, February 17, 2026 at 01:00 PM Eastern Time (US & Canada)
The Peer Support Group for Adults with FOP meets monthly.
The group provides an opportunity to connect and share experiences, suggestions and techniques to navigate challenges brought up in group discussions.
Counseling Psychologist Dr. Al Freedman, who also had a child with a rare disease, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.
Due to the conversational nature of the meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.Bingo for a Better Tomorrow
Saturday, February 28, 2026 at 05:00 PM Eastern Time (US & Canada)
The Third Annual Krisman Family Bingo Night (an adults-only event) event is hosted by Erin and Jon Krisman in honor of their son, Ethan, who lives with FOP.Date & Time: Saturday, February 28, 5-11 pm
Location: The Atreeum at Soaring Timbers, 610 North Bestgate Road, Annapolis, MD
Bingo: $40 entry includes bingo games and basket prizes (minimum $150 value); extra games available for purchase.
Poker: $100 donation to enter the Texas Hold’em tournament (freezeout, limited to 50 players).
More Information: Contact Jon Krisman at (443) 534-0494 or [email protected]
Purchase Tickets HereMarch FOP Bereaved Families Virtual Meeting
Thursday, March 05, 2026 at 08:00 PM Eastern Time (US & Canada)
The FOP Bereaved Families Group is an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.
Join us on Zoom, Thursday, March 5, at 8 pm ET.
Sign up and submit any comments or suggestions in advance by emailing [email protected]
Due to the conversational nature of the meeting, participants must be able to speak and understand English.March FOP Peer Support Group
Tuesday, March 10, 2026 at 12:00 PM Eastern Time (US & Canada)
The Peer Support Group for Adults with FOP meets monthly.
The group provides an opportunity to connect and share experiences, suggestions and techniques to navigate challenges brought up in group discussions.
Counseling Psychologist Dr. Al Freedman, who also had a child with a rare disease, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.
Due to the conversational nature of the meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.March FOP Caregiver Support Group
Tuesday, March 17, 2026 at 12:00 PM Eastern Time (US & Canada)
The Caregiver Support Group meets monthly from Noon to 1 pm ET / 18:00 to 19:00 CET.
Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.
Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.
Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.
Due to the conversational nature of this meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.
Joshua's FOP Bingo for a Cure 2026
Sunday, March 22, 2026 at 10:30 AM Eastern Time (US & Canada)
Joshua's Future Of Promises will be holding its 18th annual Bingo For A Cure fundraising event on Sunday, March 22, 2026.The event is held at the Allentown Fairgrounds Agri-Plex Building (1935 W Chew St, Allentown, PA 18104).Doors open at 10:30am. Bingo starts at 1:00pm.Tickets can be purchased online in advance for $35 or at the door for $40. Quantities are limited, so purchase early!Everyone, regardless of age, must have a ticket to enter.Check out their Facebook, Instagram (@joshuasfop), and website (joshuasfop.com) for event updates and information.Question? Email Chrissy Flexer at [email protected] or call 610-349-8479To make table reservations, please email [email protected]The 3rd Annual Ethan's Walk, a 5K in honor of Ethan Krisman
Sunday, April 26, 2026 at 10:00 AM Eastern Time (US & Canada)
The 3rd Annual Ethan's Walk, a 5K in honor of Ethan Krisman, will be held on April 26 at 10 am ET at Route 18 Park in Centreville, Maryland.
We want you to be part of the fun and join us in a 5K at Route 18 Park. Registration is $50 for a family of 4, $25 for adults, and $10 for children. If you can't join us, your donation will still support this special event.
Registrations accepted through April 26. Register by April 6 to get a t-shirt on the day of the Walk.
For more information, contact Kimberly Schultes at [email protected]
