This is not an IFOPA-sponsored event. 

Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. More information at https://globalgenes.org/event/patient-summit/. 

The 10th Annual ZipperQ is back in-person on Saturday, October 2 in Claremore, OK. This family-friendly event includes a BBQ competition and public tasting. Attendees also experience live music and kids games.

ZipperQ supports the International FOP Association which funds research to find treatments and a cure for FOP, provides education and support programs for families living with FOP, raises awareness about FOP and advocates for those with FOP, their families and caregivers.

Attendance is free and sponsorships are available. More information.

Please join Drs. Mona Al Mukaddam and Beau Park and as they discuss feminine health questions and concerns encountered by women living with FOP.

The webinar will address menstrual irregularities and hygiene, forms of contraception and management options for uterine fibroids. The webinar will end with a live Q&A session.

Register here. If you don't speak English and would like to register, please email [email protected]

FOP Family Gatherings are an incredible opportunity to learn from FOP experts and one another as a community. After the first-ever virtual FOP Family Gathering in 2020, we have seen the strengths and the limitations of a virtual meeting. In 2021, we are excited to focus on the many ways meeting virtually allows us to support the global FOP community. Opportunities for connection, learning and growth will be possible for attendees all over the world despite the ongoing COVID-19 global pandemic.

Learn more and register