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FOP February Caregiver Support Group
Monday, February 17, 2025 at 12:00 PM Eastern Time (US & Canada)
Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.
Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.
Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.
Due to the conversational nature of this meeting, participants must be able to speak and understand English.
The group meets monthly from Noon to 1 pm ET / 18:00 to 19:00 CET.
Register here -
February FOP Peer Support Group
Wednesday, February 19, 2025 at 12:00 PM Eastern Time (US & Canada)
The IFOPA's Peer Support Group for English-speaking adults with FOP is an opportunity for community members to meet monthly for a 90-minute session moderated by counseling psychologist Dr. Al Freedman, dad of a son who lived for 26 years with another rare disease.
The group provides opportunities for connection between community members by creating a safe space for socializing and sharing challenges related to life with FOP.
The group moderator, Dr. Freedman, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.
This group is open to any adult with FOP (18+) no matter where you live. However, due to the conversational nature of the meeting, participants must be able to speak and understand English.
The group meets monthly from Noon to 1:30 pm ET / 18:00 to 19:30 CET.
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Bingo for a Better Tomorrow
Saturday, March 01, 2025 at 05:00 PM Eastern Time (US & Canada)
The Atreeum at Soaring Timbers in Annapolis, MD
The Second Annual Krisman Family Bingo Night (an adults-only event) event is hosted by Erin and Jon Krisman in honor of their son, Ethan, who lives with FOP.Date & Time: Saturday, March 1, 5-11 pm
Location: The Atreeum at Soaring Timbers, 610 North Bestgate Road, Annapolis, MD
Tickets: $40 in advance and $50 at the door. Ticket includes cards for 15 games. FOP families pay only $10 to play all games.
More Information: Contact Jon Krisman at (443) 534-0494 or [email protected] -
FOP March Bereaved Families Support Group
Thursday, March 13, 2025 at 08:00 PM Eastern Time (US & Canada)
The FOP Bereaved Families Group is an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.
Join us on Zoom, Thursday, March 13, at 8 pm ET.
Sign up and submit any comments or suggestions in advance by emailing [email protected]
Due to the conversational nature of the meeting, participants must be able to speak and understand English. -
Joshua's FOP Bingo for a Cure 2025
Sunday, March 23, 2025 at 10:30 AM Eastern Time (US & Canada)
Allentown Fairgrounds, Agri-PlexThis annual event in honor of Joshua Scoble will be held Sunday, March 23 from 1:00-5:00pm (Doors open at 10:30am).
Location: Allentown Fairgrounds, Agri-Plex, 1935 W Chew St, Allentown, PA 18104
Ticket Info: $35 in advance or $40 at the door. Ticket package allows you to play every game. You may purchase additional boards. For more information, view the Facebook event.
Tickets are limited so buy them early. Reservations suggested. Everyone, regardless of age, must have a ticket for entry.
Question? Email Chrissy Flexer at [email protected] or call 610-349-8479To make table reservations, please email [email protected] -
2025 FOP Family Gathering Info Session
Sunday, March 30, 2025 at 01:00 PM Eastern Time (US & Canada)
2025 FOP Family Gathering Information Session
March 30, 1-1:45 pm ET
Learn about important resources to help with your planning for the 2025 FOP Family Gathering in Minneapolis, November 13-15.
We know the financial costs of participation can make it a challenge for families to attend. We are thrilled to have Katy Horst, a social worker with Angel Flight Central, joining us to share ways their organization can help families with air transportation.
In addition to hearing from Katy, we look forward to having members of the Family Gathering planning committee join as we share a preliminary agenda and highlight special activities for families.
Learn more and register for the March 30 Info Session. -
The 2nd Annual Ethan's Walk, a 5K in honor of Ethan Krisman
Sunday, April 27, 2025 at 10:00 AM Eastern Time (US & Canada)
The 2nd Annual Ethan's Walk, a 5K in honor of Ethan Krisman, will be held on April 27 at 10 am ET at Route 18 Park in Centreville, Maryland.
For more information, contact Kimberly Schultes at [email protected] -
Canadian FOP Network 2025 Family Conference
Thursday, June 12, 2025 at 12:00 AM through June 13, 2025 Eastern Time (US & Canada)
Canadian FOP Network Family Conference
Dates: June 12–13, 2025
Format: In-Person and Virtual
Join us for the Canadian FOP Network Family Conference, welcoming individuals living with FOP in Canada and beyond! This event is your chance to connect with Canada-based FOP experts, meet other FOP families, gain valuable insights, and participate in medical and dental clinics tailored to FOP care.
For More Information and To Register: Stay tuned for updates or reach out to Karen Munro at [email protected]
Don’t miss this opportunity to come together, learn, and grow with the Canadian FOP community! -
FOP Australia Patient Conference
Friday, August 22, 2025 at 12:00 AM through August 25, 2025 Australia/Lord_Howe
22-24 August, 2025
Melbourne, Australia
We are excited to announce the FOP Australia Patient Conference. The conference will be held in person, with some sessions offered virtually. It will feature clinicians from Australia, along with Dr. Ed Hsiao (USA) who will be attending in person, as well as Drs. Fred Kaplan and Bob Pignolo (USA) who will be attending virtually. The program is currently under development. More details coming soon.
To register, email [email protected]
For more information, contact Brooke Scott at [email protected] -
2025 FOP Family Gathering
Thursday, November 13, 2025 at 12:00 AM through November 15, 2025 Eastern Time (US & Canada)
Minneapolis, Minnesota
The FOP Family Gathering provides opportunities to meet others in the community and to have your questions answered by leading experts in the field.
The whole family is invited, and onsite childcare and children’s activities will be provided.
This year's agenda will include sessions where people living with FOP and their families can gain insightful knowledge and practical tools to advocate for themselves, manage their health, and live their best lives.
Registration opens May 1.
For more information, click here.
Hear from 2024 Family Gathering attendees.
After 2025, Family Gathering will move to an every-other-year event.