Calendar of Events

  • Webinar Session 3: Ability to Self-Calm

    Tuesday, April 21, 2020 at 08:00 PM

    The ability to self-calm is using self-awareness to practice relaxation techniques and self-regulation skills to align our intellect, emotions, actions and words. 

  • Joshua's Future of Promises 2020 Bingo for a Cure

    Sunday, May 03, 2020 at 01:00 PM

    Make plans to join us for the 13th annual Joshua's Future of Promises Bingo for a Cure in honor of Joshua Scoble! Doors open at 10:30 am and games begin at 1:00 pm. 

    Tickets: $30 in advance or $35 at the door. Ticket package allows you to play every game and you may purchase additional boards. Tickets are limited so buy them early! Reservations suggested! Everyone, regardless of age, must have a ticket for entry! To purchase tickets, contact Chrissy at auntchrissy@joshuasfop.com

    All games have a cash prize of at least $200. Guaranteed $4,000 payout. Grand Prize will be $1,000 cash! There will be lots of exciting raffles, drawings, and a huge Basket Raffle Auction.

    Proceeds benefit Joshua's Future Of Promises.

  • B.A.D. to the Bone - Bike Across Delaware to Cure FOP

    Saturday, May 09, 2020 at 09:00 AM

    B.A.D. to the Bone – Bike Across Delaware to Cure FOP

    ~14 scenic miles on the C&D Canal Trails

    EVENT IS BEING RESCHEDULED - NEW DATE WILL BE ANNOUNCED SOON

    Rolling Start 9 – 10:30am

    Fort DuPont State Park

    BIKE ACROSS DELAWARE & BE BUSSED BACK!

     

    DUE TO RECENT CDC RECOMMENDATIONS, WE ARE RESCHEDULING THIS EVENT. A NEW DATE WILL BE POSTED AS SOON AS POSSIBLE!

    Local mom, Wendy Henke, has planned a family-friendly bike ride in honor of her son Justin who has fibrodysplasia ossificans progressiva (FOP). FOP tragically transforms connective tissue into bone, resulting in rigid immobility. No effective treatments exist for the world’s ~900 known patients. Let’s change that!*

    Starting at Fort DuPont State Park, cyclists will head west to Chesapeake City, Maryland. On the C&D Canal Recreational Trails, riders will enjoy the sights and sounds of wildlife, watercraft, and overhead train and highway bridges spanning the canal. At the midway point, Grain H20 Restaurant will provide water for riders to refill their bottles. Ending in Chesapeake City at the Volunteer Fire Company Station #2, buses will return riders to the start, while bikes remain safely behind, to be picked up later by their owners.

    *Proceeds will benefit the mission-critical work of the IFOPA which funds research to find treatments and a cure for FOP, provides support programs for those with FOP and their families and caregivers, and raises awareness about FOP.

    Event Details:

    • Vehicle Parking: Fort DuPont State Park Parade Ground (Kent Avenue, Delaware City, DE)
    • Rolling Start: 9 – 10:30am. Upon signing in, riders will be guided to the trail by volunteers. A rolling start should help riders stay safely spaced along the trail system.
    • Midway Water Tent: 9:30am – Noon. Riders can refill their bottles at Grain H20 Restaurant parking lot (3006 Summit Harbor Pl, Bear, DE). No other water is available on the trail system, so plan wisely.
    • Rolling Finish: At the trail’s end, riders will be guided by volunteers to the Chesapeake City Fire Station #2 (215 Lock Street, Chesapeake City, MD).
    • Buses: 11am – 1pm. Leaving every ~30 minutes from the fire station, buses will return riders to the Fort DuPont State Park Parade Ground.
    • Bike Parking: Bikes will remain parked behind the fire station, until picked up by their owners. Bikes must be picked up NO LATER THAN 3PM.
    • Event ID Bands: ID bands are to be worn and displayed on the C&D Canal trails, at the water station, at the fire station, on the bus, and to claim bikes.
    • Bathrooms: Eco-friendly facilities dot the trail, but they do not have water.

    Preparation Details: 

    • Gear YOU should bring: Helmet, full water bottle(s), picnic lunch/snacks, sunscreen, sunglasses, perhaps binoculars
    • Bike Trail Etiquette:
      • Stay to the right.
      • Pass on the left, sounding a bell/horn or announcing, “On your left!”
      • When stopping, move entirely off of the paved trail to your right.
    • FREE & Discount Promotions:
      • FREE Bike Safety Inspections, plus discounts on parts/services, provided by Bike Line of Middletown, with proof of your “B.A.D. to the Bone” rider registration (bikes can be taken to the shop at 486 Middletown Warwick Rd, Middletown, DE prior to the event or bikes can be checked at the Bike Line tent onsite day of the event)

    Rider Registration:

    • $30 per person by Date TBD
    • $40 per person Date TBD (online registration closes day before, on-site registration is available)

    Click here for rider registration

    Volunteer Opportunities:

    • Parking Volunteers: Direct attendees where to park on the Parade Ground at Fort DuPont State Park. 8 – 11am. (Kent Avenue, Delaware City, DE)
    • Registration Volunteer: Help participants sign in or register at the event. 8 - 11am (Kent Avenue, Delaware City, DE)
    • Starting Volunteer: Assist participants in safely walking their bikes to the start of the trail. 8 - 11am (Kent Avenue, Delaware City, DE)
    • Water Volunteer: Help riders refill their bottles at the Grain H2O Restaurant parking lot tent. 9am - Noon (3006 Summit Harbor Pl, Bear, DE)
    • Finishing Volunteer: Assist participants in safely walking their bikes from the end of the trail to the Chesapeake Fire Station. 10am – 1pm (215 Lock Street, Chesapeake City, MD)
    • Bike-Valet Volunteer: At the fire station, park bikes as labeled. When owners return to reclaim bikes, check that ID bands match, and help owners walk their bikes to their vehicles. Noon – 3pm (215 Lock Street, Chesapeake City, MD)
    • Bus Volunteer: Assist participants in getting on & off buses, ride along, and help keep the buses tidy. 10:30am - 1:30pm (Kent Avenue, Delaware City, DE)

    Click here to Volunteer 

    Can't attend? You can still support the event! Click here to Donate

    Looking to support the event in a bigger way? Click here to Sponsor the event

     

    b-b-b-BIG thanks to:

    Fort DuPont Development Corporation

    Chesapeake City Volunteer Fire Co. No. 1

    Caravel Academy

    Grain H20

    LifeHouse

    Bike Line of Middletown

    Smartech Electrical

    Premier Physical Therapy & Sports Performance

    Bright Dental

    Middletown Family Care

    Middletown Veterinary Hospital

    Strano & Feeley Family Funeral Home

    Our Volunteers!

  • Webinar Session 4: Hardiness

    Tuesday, May 19, 2020 at 08:00 PM

    Hardiness is our ability to place ourselves at the center of the controls and realize that challenges create opportunities for potential learning, growth and personal betterment. 

  • Webinar Session 5: Self-care

    Tuesday, June 16, 2020 at 08:00 PM

    Self-care is choosing healthy behaviors that balance the effects of emotional and physical stressors.

  • FOP Ashley's Cure Gala

    Monday, October 05, 2020 at 06:00 PM
    The Wagner Hotel in New York, NY

    Join us for the 4th FOP Ashley's Cure gala in honor of Ashley Martucci. This special event benefiting the IFOPA and the University of Pennsylvania will be a gathering of family, friends and colleagues enjoying cocktails, dinner, and auctions - both silent and live - with one of a kind items and experiences. Sponsorships and tickets are available here

     

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter