Calendar of Events

  • First FOP Meeting Brasil/Africa

    Thursday, August 23, 2018 at 08:00 AM through August 26, 2018
    São Paulo, Brazil

    Dr. Patricia Delai of Brasil and Dr. Chris Scott of South Africa are pleased to present the first FOP meeting for those living in Brasil and Africa. It will be an opportunity to hear research and clinical trial updates from FOP experts from around the world. You will also learn about tools and resources for living with FOP, as well as strategies for managing your health. Finally, there will be an opportunity to have a consultation with an FOP expert physician or dentist.

    Aug, 23 - Families arrive with dinner that evening
    Aug. 24 - Meetings (includes breakfast, lunch and a formal dinner)
    Aug. 25 - Meetings (includes breakfast and lunch)
    Aug. 25 - FOP Medical and Dental Clinics
    Aug. 26 - FOP Medical and Dental Clinics

    This meeting is designed for FOP families living in Brasil and Africa and a portion of their costs will be provided. If you are interested in attending and live outside of these areas, you will be responsible for all costs of traveling to and participating in the event.

    Contact event planner Consuelo Ruiz at to inquire about registration. Registration can only be considered through July 31, 2018. Registration is limited and may close early.  

  • ZipperQ 7

    Saturday, October 06, 2018 at 03:00 PM
    Claremore Expo Center

    Don't miss this family-friendly event for everyone! Every year, ZipperQ features an annual BBQ Cook Off, Cornhole Tournament and more.

    Learn more, register or donate > 

  • FOP Family Gathering

    Friday, November 16, 2018 at 04:00 PM through November 18, 2018
    Four Seasons Baltimore


    The FOP Family Gathering is a great opportunity for families to learn from FOP experts, participate in clinics and connect with other FOP families. We hope you are making plans to join us on Nov. 16-18, 2018 in Baltimore, Maryland. This year's Gathering will be the first time since the year 2000 that a Gathering will be held in the Northeast. 

    Registration is now open! Learn more and register.

    Family Gathering Agenda

    Friday, Nov. 16 - You'll have the opportunity to participate in FOP Medical and Dental Clinics, tell your FOP story, and more! We'll have a Welcome Dinner Friday evening.
    Saturday, Nov. 17 - We'll spend the day hearing from FOP experts and have breakfast, lunch and dinner together.
    Sunday, Nov. 18 -  While the morning will consist of a few more presentations, the majority of the day you'll spend sharing with and learning from one another in breakout groups. We'll have breakfast and lunch together. FOP Medical and Dental Clinics will also be available throughout the day. 


    Send an email to or contact Hope Newport, Family Services Manager, at (816) 854-0920.

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter