Calendar of Events

  • An Intro to Resiliency Webinar

    Tuesday, April 23, 2019 at 12:00 PM

    The FOP community is fortunate to have an amazing team of experts to help address medical needs. We are excited to launch the Resiliency Training Program to focus on the emotional, social and psychological challenges that come along with FOP. To read the news article on this new program visit:

    Please join us on Tuesday, April 23 for an IFOPA webinar to learn about the foundation of the resiliency framework and the future opportunities to benefit from this framework through the IFOPA. The webinar will be presented by Hayley Stolzle, Resilience Program Coordinator at Turning Point and Hope Newport, Family Services Manager at the IFOPA. 

    Register here.

     **The webinar will only be available live in English. A recording of the webinar will be available at a later date and subtitles can be translated to a variety of different languages.

  • Downtown Derby

    Saturday, May 04, 2019 at 02:00 PM
    North Block Common in Claremore, OK

    Break out your hats, it's time for a Kentucky Derby party! Join us for a fun day of horse racing, food, Mint Juleps and more. 


    Tickets are $30.00 per person or $50.00 per couple and can be purchased here. Proceeds benefit the IFOPA. 

  • Battle of the Biotech Bands

    Thursday, May 30, 2019 at 07:00 PM
    Royale Nightclub in Boston, MA

    We are excited to announce that 2019 Battle of the Biotech Bands tickets are officially on sale! Go to to purchase your ticket(s) today.

    Four bands will compete, including last year's winner, Semi Good Lookin', who will compete again for the IFOPA. Only one can win the title and 50% of the proceeds for their chosen charity. All other bands split the remainder of the profits, everyone wins!


  • Million Dollar Bike Ride 2019

    Saturday, June 08, 2019 at 07:30 AM
    Highline Park in Philadelphia, PA

    Join Team #cureFOP in the 2019 Million Dollar Bike Ride. Your participation as a cyclist or donor will help us raise much-needed funds for new FOP research grants. The Orphan Disease Center will match funds raised up to $30,000. You can ride with us in Philadelphia, ride in your own community, ride virtually by fundraising from your home, or you can make a donation. Click here to get started.

  • Bombers for Bones 2019

    Saturday, July 20, 2019 at 10:00 AM · $25.00 USD
    Metzler's Ranch Park in Castle Rock, CO

    Join us for a fun-filled Home Run Derby and Skills Competition. Compete for trophies and titles, test your baseball skills, enjoy baseball-themed food and more! Teams and individuals of all ages are welcome. 

    $25 donation - Entry into skills competition and home run derby

    Sponsorships are available beginning at $250.

    Proceeds support the IFOPA.

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