The FUNNEST 5K north of the Arctic Circle returns on Saturday, July 31 in Kotzebue AK.

The 7th annual color run will raise funds for research in honor of Dilyn Martin and you're guaranteed to have a fun, colorful time as you run/walk through each of the 7 color stations throughout Kotzebue.

Want to participate but don't live in Alaska? No problem! The event is both in-person and virtual this year so you can join the fun from wherever you live.

Register via this link. 

We can’t plan for everything, but we can talk about what is most important - in our health care, and in our life.

Kate DeBartolo, Senior Director at the Conversations Project, is joining the IFOPA in this webinar to help everyone talk about their wishes for care through the end of life, so that those wishes can be understood and respected.

Wednesday, August 11 at 1 pm EDT / 6 pm BST.
Translation will be available in 18 languages.

Learn more and register.

This is not an IFOPA-sponsored event. 

Each year Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners and allies. More information at https://globalgenes.org/event/patient-summit/. 

The 10th Annual ZipperQ is back in-person on Saturday, October 2 in Claremore, OK. This family-friendly event includes a BBQ competition and public tasting. Attendees also experience live music and kids games.

ZipperQ supports the International FOP Association which funds research to find treatments and a cure for FOP, provides education and support programs for families living with FOP, raises awareness about FOP and advocates for those with FOP, their families and caregivers.

Attendance is free and sponsorships are available. More information.