The FOP Bereaved Families Group is an opportunity for those who have lost a friend or loved one to FOP to come together virtually to support each other.

Join us on Zoom, Thursday, January 22, at 8 pm ET.

Sign up and submit any comments or suggestions in advance by emailing [email protected]

Due to the conversational nature of the meeting, participants must be able to speak and understand English.

Register here

The Caregiver Support Group meets monthly from Noon to 1 pm ET / 18:00 to 19:00 CET.

Whether you're a parent or a partner, caring for a loved one with FOP is a unique experience that few can relate to. You deserve a community that understands your life and encourages you through the highs and lows.

Join our monthly Caregiver Support Group and connect with fellow caregivers to get questions answered, share your experiences, and support each other as you support your loved ones.

Each session is moderated by counseling psychologist Dr. Al Freedman, whose son lived for 26 years with a rare disease.

Due to the conversational nature of this meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes. 

Register here

The Peer Support Group for Adults with FOP meets monthly.

The group provides an opportunity to connect and share experiences, suggestions and techniques to navigate challenges brought up in group discussions.

Counseling Psychologist Dr. Al Freedman, who also had a child with a rare disease, will offer suggestions and techniques to help navigate challenges that are brought up in group discussions.

Due to the conversational nature of the meeting, participants must be able to speak and understand English. The meeting lasts for 60 minutes.

The Third Annual Krisman Family Bingo Night (an adults-only event) event is hosted by Erin and Jon Krisman in honor of their son, Ethan, who lives with FOP.

Date & Time: Saturday, February 28, 5-11 pm
Location: The Atreeum at Soaring Timbers, 610 North Bestgate Road, Annapolis, MD
Bingo: $40 entry includes bingo games and basket prizes (minimum $150 value); extra games available for purchase.
Poker: $100 donation to enter the Texas Hold’em tournament (freezeout, limited to 50 players).
More Information: Contact Jon Krisman at (443) 534-0494 or [email protected]

Purchase Tickets Here

This annual event in honor of Joshua Scoble will be held Sunday, March 22 from 1:00-5:00pm (Doors open at 10:30am).

Location: Allentown Fairgrounds, Agri-Plex, 1935 W Chew St, Allentown, PA 18104

Ticket Info: $35 in advance or $40 at the door. Ticket package allows you to play every game. You may purchase additional boards. For more information, view the Facebook event.

Tickets are limited so buy them early. Reservations suggested. Everyone, regardless of age, must have a ticket for entry.

Register HERE

The 3rd Annual Ethan's Walk, a 5K in honor of Ethan Krisman, will be held on April 26 at 10 am ET at Route 18 Park in Centreville, Maryland.

For more information, contact Kimberly Schultes at [email protected]

Register Here