Patients and Families
Downloadable Medical Forms
Download the medical forms below to stay organized and ready.
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Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
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Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back to School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Resources For Physical and Occupational Therapists
- Age Specific Tips for Navigating School and FOP
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- Ability Toolbox Program
- Resilient Living Program
- The Harold and Elaine Kaplan Quality of L.I.F.E. Award
- In Remembrance
