Listen to the Quarter 2 Podcast

In our second episode of the 2021 Advocacy Series, IFOPA Family Services Coordinator Karen Kirchhoff interviews Amanda Cali, FOP mom, Advisor to the Tin Soldiers Program, Trustee of the RadiantHope Foundation and Executive Associate on the International Clinical Council on FOP (ICC). Amanda candidly speaks about her experiences raising a child with FOP and shares the parenting strategies she used to empower her children to ensure they grew up with a self-sufficient mindset and were prepared to live successfully on their own. Amanda also discusses different opportunities she gave her sons at different ages (child, teen and young adult years) that helped them eventually become their own best advocate.

 

Begin Practicing Simple Strategies With Your Child To Promote Advocacy At All Ages:

• Download this quarter’s Advocacy At All Ages Worksheet (pictured right) and try a few of the activities to help you start providing your child opportunities for independence. This PDF can be printed and filled in by hand or completed on your computer using free Adobe software you can download at Adobe Acrobat Reader.
• Within this worksheet, you’ll also find a link for sample Pain Charts and Feelings Charts (pictured bottom right) to help your child learn to express his or her needs. Consider making custom charts for you and your child, or download and start using our sample charts today. 
• Read more about The Advocacy Series.

For more information about the program or to share your experience as an advocate, please contact IFOPA Family Services Manager Hope Newport or Family Services Coordinator Melissa Davis.

Watch to the Quarter 2 Community Panel

Watch the Quarter 2 Resource Webinar