The IFOPA’s International Presidents' Council (IPC), founded in 2007, is a network of volunteers who are committed to helping their national and regional FOP communities by keeping FOP families connected and informed about treatments and research.

If you are interested in connecting with an FOP organization in your country or area, see our FOP National Organizations page.

IPC Steering Committee

Chris Bedford-Gay, Chair
Marie H. Fahlberg
Nadine Großmann 
Moira Liljesthröm
Michelle Davis, IFOPA
Hope Newport, IFOPA

IPC Representatives

Africa – Odette Schwegler, FOP Africa

Argentina – Moira Liljesthröm, Fundación FOP

Australia – Brooke Scott, FOP Australia

Brasil – Janaina (Jana) Kuhn, FOP Brasil

Canada – Karen Munro, Canadian FOP Network

Chile – José Maldonado, FOP Chile

China – Xin (Steven) Shi, FOP Association of China

France – Antoine Lagoutte, FOP France

Germany – Nadine Großmann, FOP Germany 

Greece – Maria Tsigkou

India – Sunil Kumar Ladwa, FOP Trust

Italy – Massimo Alfieri, FOP Italia

Malaysia – Qusya Basher

Netherlands – Saskia Blonk, FOP Stichting Nederland

Poland – Robert Pióro, FOP Polska

Romania – Elena Pomana, Asociatia Daruieste Fericire (The Association Gives Happiness)

Russia – Anna Belyaeva, FOP Russia. Живущие с ФОП

Serbia – Jelena Milosevic

South Korea (Republic of Korea) – Kerry (K.J.) Lee, Korean FOP Overcome Family (KFOPOF)

Spain – Beatriz (Bea) Haro Pico, AEFOP-Asociación Española de Fibrodisplasia Osificante Progresiva

Sweden (Nordic, Baltic) – Marie H. Fahlberg, Svenska FOP-föreningen

Switzerland – Roger-René Müller, Noi Ci Siamo! (We are Here)

United Kingdom – Chris Bedford-Gay, FOP Friends

United States – IFOPA

IPC Associate Members

Denmark – Julie Christensen, Denmark's page on Svenska FOP-föreningen's website

Paulina Gutierrez, Ifopers Latinos