International President's Council

The IFOPA’s International President’s Council (IPC), founded in 2007, is a network of volunteers who are committed to helping their national and regional FOP communities by keeping FOP families connected and informed about treatments and research.

If you are interested in connecting with an FOP organization in your country or area, see our FOP National Organizations page.

IPC Steering Committee

Michelle Davis, IFOPA
United States

Marie H. Fahlberg
Sweden

Chris Bedford-Gay, Chair
United Kingdom

Nadine Grossmann 
Germany

Moira Liljesthröm
Argentina

IPC Representatives

Massimo Aflieri
Italy

Anna Belyaeva
Russia

Elinor Bouvy-Berends, C.M. DDS
The Netherlands

Carrie Connell
Canada

Enrico Cristoforetti
Italy

Patricia Delai, MD
Brazil

Sonia Las Heras González
Spain

Sunil Kumar
India

Antoine and Marie-Emmeline Lagoutte
France

Juliana Louise
Malaysia

Jelena Milosevic
Serbia

Anabel Montoya Ortega
Mexico

Robert Pióro
Poland

Mika Jilanee T. Sagara
Japan

Odette Schwegler
South Africa

Brooke Scott
Australia

Xin Shi
China

Christiaan Scott, MBChB, FCPaed
South Africa

Keqin Zhang, MD, PhD
China

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