International President's Council

The IFOPA’s International President’s Council (IPC), founded in 2007, is a network of volunteers who are committed to helping their national and regional FOP communities by keeping FOP families connected and informed about treatments and research.

If you are interested in connecting with an FOP organization in your country or area, see our FOP National Organizations page.

IPC Steering Committee

Chris Bedford-Gay, Chair
United Kingdom

Marie H. Fahlberg
Sweden

Michelle Davis, IFOPA
United States

IPC Representatives

Massimo Aflieri
Italy

Kelly Barrow, MSc
South Africa

Anna Belyaeva
Russia

Elinor Bouvy-Berends, C.M. DDS
The Netherlands

Carrie Connell
Canada

Enrico Cristoforetti
Italy

Patricia Delai, MD
Brazil

Sonia de las Heras
Spain

Nadine Grossmann 
Germany

Sunil Kumar
India

Antoine and Marie-Emmeline Lagoutte
France

Moira Liljesthröm
Argentina

Juliana Louise
Malaysia

Jelena Milosevic
Serbia

Anabel Montoya Ortega
Mexico

Robert Pióro
Poland

Mika Jilanee T. Sagara
Japan

Brooke Scott
Australia

Christiaan Scott, MBChB, FCPaed
South Africa

Keqin Zhang, MD, PhD
China

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