Patients and Families
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The Ability Toolbox Program is designed to empower individuals with FOP by promoting independence through the use of tools and home adaptations.
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The Resilient Living Program provides education for strengthening the mind and spirit as every family works to overcome the challenges they face throughout their journey with FOP.
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The Harold and Elaine Kaplan Quality of L.I.F.E. (Living Independently with Full Equality) Awards are scholarships granted to patients with FOP. The program is designed to promote health, welfare and independence.
- Take part in The Advocacy Series to explore ways to become a more effective communicator and problem solver to get your needs met in a variety of settings.
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Explore our Sibling-Specific Resources for the brother and sister of your child with FOP and explore some of the incredible work other organizations are doing to support siblings.
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Partner with a veteran member of the community by joining the FOP Connect: Peer Mentor Program designed to provide the opportunity to have mentors provide support to others on their journey with FOP.
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Begin planning the financial health for yourself or your loved one with FOP by exploring special needs financial planning and ABLE accounts (applicable for US families only.)
