Meet Other Patients

Read stories of living with FOP

Meet other people living with FOP and get inspired by their stories of strength and courage. Check out Family Blogs and Websites and read their stories below. Learn about their struggles and determination to live the life they choose. 

Will you share your story and help inspire others? We'd love to hear from you. Please complete our online form.

Want to Connect Directly with Other Patients?

Check out our support group offerings, contact IFOPA or call (816) 809 2772


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