Your involvement makes a difference!

Hundreds of volunteer hours are donated each year by supporters of the IFOPA. Without them, our efforts would not be possible.

Would you like to join this group working to cure FOP? Here are just a few ways you can get involved:

  • Fundraise - Fundraising helps the IFOPA provide critical services to the FOP community. Raise money by hosting a dinner, golf tournament, garage sale or other community event.
  • Share Your Story – Share your story about life with FOP, or your expertise as it relates to FOP. We are always looking for stories to feature on social media and in other print and web pieces.
  • Raise Awareness and Advocate for FOP Help get the word out about FOP in your local community.
  • Participate in a Clinical Study or Trial - There are many reasons to participate in clinical trials. Learn more about open trials and why they're important.

If you would like to volunteer, get started by filling out our volunteer form or visiting any of the links above.



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