Patients and Families
- Explore the Advocacy Series "College, Careers and Pursuing a Vocation" unit to learn how others living with FOP have navigated their career path, what led them to their current profession, the obstacles they have faced, adaptations they've found helpful and more.
- Learn more about individuals with FOP who have partnered with service animals.
- Just Whip It – "A no-nonsense guide for preparing food for individuals with chewing or swallowing impairments." This cookbook includes recipes and cooking guides for those living with FOP, created by FOP'er Nancy Sando.
- Livro De Receitas – FOP Community member Ana Laura Tavares shared her experience cooking from Livro De Receitas, a Portuguese cookbook created specifically for individuals with FOP.
- Peer Support Group: The IFOPA's Peer Support Group for English-speaking adults with FOP is an opportunity for community members to meet monthly for a 60-minute session moderated by counseling psychologist Dr. Al Freedman, dad of a son who lived for 26 years with another rare disease. The group provides opportunities for connection between community members by creating a safe space for socializing and sharing challenges related to life with FOP. The group moderator, Dr. Freedman, will offer suggestions and techniques to help navigate challenges that are brought up in group discussion.
