IFOPA News

New Biobank Generates Excitement for Research

“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”

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High School Club in South Korea Sending Support to the FOP Community

Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.

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We're Grateful for our FOP Registry Sponsors

We are very pleased to announce the IFOPA has secured FOP Registry sponsorship! 

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New Friends of the IFOPA Busy Spreading FOP Awareness

"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."

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An Intro to Resiliency Webinar

Join us for the Intro to Resiliency Webinar

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FOP Mouse Model Now Available to Researchers

The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.

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The Quality of L.I.F.E. Awards Receive a Transformational Donation

A gift from Dr. Frederick S. Kaplan renames the awards as The Harold & Elaine Kaplan Quality of L.I.F.E. Awards

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Goal of 20 New Monthly Donors Achieved

Together, we did it! 

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Meet FOP Connect Mentor Patrick Doerr

"I hope that my life experiences can make someone else’s journey a little easier.”

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Resiliency Grant Awarded

The IFOPA Receives $10,000 Global Genes RARE Patient Impact Grant to Launch Emotional Resiliency Training Program

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