Patients and Families
The IFOPA publishes the FOP Connection, an e-newsletter designed for families dealing with FOP and other interested individuals. To help those with FOP and their families, we include information and ideas from our readers on methods of management and care for FOP.
These e-newsletters are sent directly to your email address or can be found on our website. If you would like to begin receiving the FOP Connection, please sign up today!
We invite you to take a moment to let us know what you think of our e-newsletter, and what you would like to see in future issues. Please contact us with ideas and suggestions.