Patients and Families
FOP Connection eNewsletter
The IFOPA publishes the FOP Connection, an e-newsletter designed for families dealing with FOP and other interested individuals. To help those with FOP and their families, we include information and ideas from our readers on methods of management and care for FOP.
These e-newsletters are sent directly to your email address or can be found on our website. If you would like to begin receiving the FOP Connection, please sign up today!
We invite you to take a moment to let us know what you think of our e-newsletter, and what you would like to see in future issues. Please contact us with ideas and suggestions.
Sign up today to receive our email newsletter.
- Meet Other Patients
- Patient Directory and Registry
- The Advocacy Series
- Managing Your Healthcare
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
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Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back to School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Special Needs Financial Planning
- Age Specific Tips for Navigating School and FOP
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- Ability Toolbox Program
- FOP Family Gatherings
- Resilient Living Program
- In Remembrance
- The Harold and Elaine Kaplan Quality of L.I.F.E. Awards
