Pursuit of a Cure

Research is the key.
Together, let's find a cure for FOP.
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In Pursuit of a Cure

The IFOPA has been funding FOP research since 1990. It’s the dedication and generosity of our amazing FOP community — YOU — that allows us to expand the research we fund in search of treatments and a cure.

With the 2021 In Pursuit of a Cure Campaign Investing in Progress. Believing in Hope. we’re excited to continue the exploration of gene therapy for the treatment of FOP and fund NEW ACT for FOP drug development grants. Gene therapy does not replace traditional drug discovery. Gene therapy represents another weapon in our arsenal against the devastating effects of FOP. 

How can you get involved? We need every member of the FOP community to: Get the Facts and learn about gene therapy. Spread the Word and invite your friends to the live video event. Take Action and register for the live event and make a generous gift to support this mission-critical campaign.

We can search for treatments and a cure together!


Learn more about gene therapy by watching videos on our website and attending a webinar on August 12.


Tell others about the IFOPA’s success in cutting-edge research programs, set up a personal fundraising page and invite your friends and family to get involved.


Attend our virtual event on August 25 or 26 to show your support for Investing in Progress. Believing in Hope. You can select the viewing time that works best for you.

We hope to raise $300,000 to continue our progress towards treatments and a cure. The first $50,000 in donations will be matched!

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