The future they dream of is the one YOU can build.
It's a future of running freely, of spontaneous hugs, of living without the constant worry of the next flare-up. It is a life without limits — the future every child and adult with FOP deserves.
For 35 years, a dedicated community of champions has refused to accept those limits, turning hope into action and funding life-changing research breakthroughs along the way. That journey has brought us to this critical moment.
On September 16, for our In Pursuit of a Cure Day of Giving, your support is more vital than ever to continue this legacy of progress. You can power the next discovery and help build a future of freedom and boundless possibility for every person with FOP.
Be their champion. Make your transformative gift today.
This year, we are raising $500,000 — with 100% of every dollar raised going directly to research.
Your Generosity:
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Funds the next scientific discovery that unlocks new information about FOP
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Helps research new ultrasound technologies to assess and treat FOP flares
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Supports new research to deepen our understanding of potential treatment pathways and possibilities for mobility recovery
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Prioritizes efforts to enable successful clinical trials, including STOPFOP
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Ultimately, paves the way for one day finding a cure
“A cure for FOP would be life-changing. Not just for Ethan, but for our entire family. We would finally be able to take a breath and not worry all the time. A cure would allow him to live the life he wants to live—to run free. He wants to be free.”
Be part of the next FOP breakthrough.
As one of the largest funders of FOP research, nearly two-thirds of the IFOPA’s annual budget is dedicated to funding the highest-quality research, providing research tools, hosting scientific meetings and engaging the FOP community.
Here's some of what your gift will support:
Together, we are committed to finding a cure.
100% of every dollar raised goes directly to critical research.
The IFOPA is committed to funding research until we find multiple treatments and, ultimately, a cure for FOP. Join us today to invest in a more hopeful tomorrow.
