Pursuit of a Cure

Research is the key.
Together, let's find a cure for FOP.
Picture of Doctors

In Pursuit of a Cure

The IFOPA has been funding FOP research since 1990. In 2020, we celebrate 30 years of funding research at the University of Pennsylvania! It’s the dedication and generosity of our amazing FOP community that allows us to expand the research we fund in search of treatments and a cure.

This year we’re launching the In Pursuit of a Cure Campaign to fund new ACT for FOP competitive research grants and the IFOPA’s first-ever targeted research grant in gene therapy.

Gene therapy doesn’t replace drug development or current and future clinical trials. But if successful, gene therapy has the potential to cure FOP. We can search for treatments and a cure together!

You can be part of In Pursuit of a Cure right now!


Learn more about gene therapy by a short video on our site and attending a webinar on August 13


Tell others about the IFOPA’s expanding research grant program, set up a personal fundraising page and invite your family and friends to get involved


Attend our virtual event on August 26 or 27 to show your support for expanding FOP research
(You can select the viewing time that works best for you)

We hope to raise $250,000 toward new paths to treatments and a cure.
The first $50,000 in donations will be matched!

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter