Pursuit of a Cure

Research is the key.
Together, let's find a cure for FOP.
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In Pursuit of a Cure

The IFOPA has been funding FOP research since 1990. In 2020, we celebrate 30 years of funding research at the University of Pennsylvania! It’s the dedication and generosity of our amazing FOP community that allows us to expand the research we fund in search of treatments and a cure.

In 2020, the IFOPA launched the In Pursuit of a Cure Campaign to fund new ACT for FOP drug development grants and the IFOPA’s first-ever targeted research grant in gene therapy.

Gene therapy doesn’t replace drug development or current and future clinical trials. But if successful, gene therapy has the potential to cure FOP. We can search for treatments and a cure together!

You can be part of In Pursuit of a Cure!


Learn more about gene therapy


Watch the 2020 virtual event — In Pursuit of a Cure — An Evening of Inspiration & Possibility

In 2020, through the tremendous generosity of the FOP community, we raised nearly $490,000 toward new paths to treatments and a cure.

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