Patients and Families
Choosing a Caregiver
PCA & YOU: A Practical Approach at Managing Your Care was written by FOP community member Nancy Sando in 2002 and updated in 2018. PCA & YOU is a guide that was made to be helpful for anyone who is in need of caregiving.
These are only suggestions but probably ones you may not have thought of on your own. Hiring, managing, and maintaining care staff is an ongoing process and this resource aims to support you through the journey.
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Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- Connecting with the FOP Community
- Resources for Support
- Ability Toolbox Program
- Resilient Living Program
- The Harold and Elaine Kaplan Quality of L.I.F.E. Award
- In Remembrance