Advocating for Mobility and Independence



In our fourth episode of the 2021 Advocacy Series, IFOPA Family Services Coordinator Karen Kirchhoff speaks with FOP mom Lisa Gillooly about her experiences advocating for her daughter Sara's equipment needs. Lisa shares stories of Sara's early exposure to tools, the trials and errors of finding tools that worked, and how the family made including Sara in family and community activities a priority. As Sara grew older and FOP began to limit her mobility more, Lisa reflects on the ups and downs they went through learning to navigate the healthcare system for access to more advanced equipment that Sara needed.

Download this quarter’s Advocating for Mobility & Independence Resource Worksheets (pictured right) and answer the prompt questions to help you start prioritizing resources, tools or adaptive equipment you would like to pursue in order to assist with mobility and help you participate in the activities you enjoy. This PDF can be printed and filled in by hand or completed on your computer using free Adobe software you can download at Adobe Acrobat Reader.

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