Patients and Families
In Remembrance
The FOP community is a family. As a family, we share the good times and bad with each other and pause to give gratitude for the gift of friendship. Please join us in honoring and remembering our friends and loved ones who have passed on.
View our additional resources for support with grief and loss.
If you would like to add a photo to the IFOPA In Remembrance page, please send it to [email protected] along with the individual’s full name, year of their birth and the year of their passing.
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- Meet Other Patients
- Patient Directory and Registry
- The Advocacy Series
- Managing Your Healthcare
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
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Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back to School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Special Needs Financial Planning
- Age Specific Tips for Navigating School and FOP
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- Ability Toolbox Program
- FOP Family Gatherings
- Resilient Living Program
- In Remembrance
- The Harold and Elaine Kaplan Quality of L.I.F.E. Awards