The IFOPA is currently hiring for the following position. To apply, please send your resume along with a cover letter and portfolio with work samples to [email protected] by May 3, 2024.

Title: Marketing Manager

Location: United States

Organization’s Mission: To fund research to find a cure for FOP while supporting, connecting and advocating for individuals with FOP and their families, and raising awareness worldwide. 

About the Organization: The International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is an international nonprofit organization fostering medical research and providing education and support for those afflicted by the rare genetic condition fibrodysplasia ossificans progressiva (FOP). A volunteer board of directors governs the IFOPA. We hold ourselves accountable to the FOP community. As an organization, we work closely with patients and families, national FOP organizations around the world, and leading clinicians, scientists and drug developers. 

Position Overview: The IFOPA’s Marketing Manager is responsible for the development and coordination of marketing, branding and communications for our mission-driven organization. This position supports the IFOPA’s programs, events and activities, working with internal and external partners including an external strategic marketing partner. Overall responsibilities include the collaborative planning, development, management, publication and reporting of organization marketing activities.

Hours, Supervision and the IFOPA Office: This full-time salaried position reports to the IFOPA’s Executive Director with significant collaboration with other IFOPA staff members. All IFOPA staff members work remotely from their homes. Occasional travel required – approximately 2-4 times per year.

Salary Range and Benefits: The salary range for this position is $55,000 - $65,000 with opportunities for cost-of-living raises; health, life, dental and vision insurance; short-term and long-term disability; parental leave, generous PTO policy and paid holidays. Stipends are provided for the purchase of both home office equipment and a laptop and there is a monthly reimbursement for cell and WIFI service.

Position Responsibilities:

This position provides marketing communications support for the IFOPA’s programs, events and activities working with internal and external partners, including an external strategic marketing partner. Overall responsibilities include the collaborative planning, development, management, publication and reporting of organization marketing activities. This includes:

Graphic Design

  • Collaborate with staff members to create or provide updated graphic assets for day-to-day programs and events including program materials, social media posts, on-site event assets, etc.
  • Coordinate strategic graphic design needs with an external partner for fundraising campaigns, program launches, etc.

Social Media

  • Manage and execute engaging social media activities including writing creative copy, designing assets (video, text and photo), building and executing posts, reporting and analysis
  • Collaborate with IFOPA staff to build and coordinate the social media calendar leveraging social media channels to promote events, programs and campaigns
  • Coordinate commenting and direct messaging across all social channels (monitor brand mentions and interactions)
  • Collaborate with internal and external partners to set and achieve actionable metrics and monitor the success of social media campaigns, prepare reports
  • Ensure content is written, published and technically built so that it reaches the largest audience possible, including paid ad placements
  • Continue to build an online community by increasing followers and engagement


  • Manage the IFOPA website and work with external partner to implement recommended web engagement strategies and tactics
  • Update information on the IFOPA website and ensure that search engine strategies are in place, as well as integration with the CRM, donation platform and other tools, as appropriate
  • Work with external partner to execute website redesign project (NationBuilder to WordPress) and ongoing review of website experience with input from key leaders and external partners
  • Analyze web traffic and reporting via Google Analytics


  • Coordinate content including content writing and graphic design, build email, attach lists and deploy eBlasts including two monthly eNewsletters, email series for three fundraising appeals (in conjunction with fundraising staff) and other eBlast communications in Constant Contact
  • Help to maintain the integrity of contacts and lists in Constant Contact and CRM
  • Pull reports and analyze results for various email campaigns

Brand Development

  • Reinforce brand voice and social media identity
  • Coordinate overall marketing communications strategy and tactics with external strategic marketing partner
  • Organize brand assets, photography and graphics used for social initiatives
  • Track and report necessary data to measure progress and success of all campaigns and initiatives

Position Qualifications:

  • BS/BA degree preferred
  • Nonprofit experience strongly preferred
  • Graphic design knowledge and experience, fluency in the Adobe Software suite (specifically, InDesign, Photoshop) or Canva
  • Comfortable with web-based project management tools and collaboration technologies
  • Strong project management and general organizational skills
  • Ability to work independently and effectively in a virtual setting
  • Excellent attention to detail, strong written and verbal communication skills
  • Expertise with Microsoft Office (Word, Excel and PowerPoint) and Google Workspace


The IFOPA is an equal employment opportunity employer and strives to comply with all applicable laws prohibiting discrimination based on race, color, creed, sex, age, national origin or ancestry, physical or mental disability, veteran status, marital status, etc., as well as any other category protected by federal, state, or local laws.

The job profile in no way states or implies that these are the only duties to be performed by the jobholder; the Marketing Manager will be required to follow instructions and perform other duties as requested by the Executive Director. Essential elements may change when necessary.

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