Contact Us

IFOPA Office

1520 Clay St., Ste. H-2
North Kansas City, MO 64116 USA

Telephone: +1 816 809 2772

General Inquiries


FOP Registry

For any questions about the FOP Registry including general and technical questions, please contact the following:

Email:  [email protected]

Phone:  +1 866 761 0145  (answered 24 hours a day, English only)

Contact the IFOPA Board of Directors

We appreciate your partnership in finding a cure for FOP. If you have questions, comments or suggestions for the IFOPA Board, please email

IFOPA's Privacy Policy

Learn more about the website analytics used by the IFOPA and how data is collected, stored and used. The IFOPA does not provide email lists to any third party. 

Make a Difference

Donate Connect Fundraise
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter