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IFOPA Office

1520 Clay St., Ste. H-2
North Kansas City, MO 64116 USA

Telephone: +1 816 809 2772

General Inquiries


FOP Registry

For any questions about the FOP Registry including general and technical questions, please contact the following:

Email:  [email protected]

Phone:  +1 866 761 0145  (answered 24 hours a day, English only)

Contact the IFOPA Board of Directors

We appreciate your partnership in finding a cure for FOP. If you have questions, comments or suggestions for the IFOPA Board, please email

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