Patients and Families
FOP International Organizations
The work of the IFOPA is supported and complemented by national organizations across the globe. Organizations are listed below, along with website, social media pages and email contact, if available. While these organizations are not formally affiliated with IFOPA, we are deeply grateful for the work they do outside of the USA to serve the FOP community and connect individuals and families with resources and other FOP patients on a regional and national level. Questions? Please contact the IFOPA at [email protected].
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Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- Connecting with the FOP Community
- Resources for Support
- Ability Toolbox Program
- Resilient Living Program
- The Harold and Elaine Kaplan Quality of L.I.F.E. Award
- In Remembrance