Patients and Families
FOP International Organizations
The work of the IFOPA is supported and complemented by national organizations across the globe. Organizations are listed below, along with website, social media pages and email contact, if available. While these organizations are not formally affiliated with IFOPA, we are deeply grateful for the work they do outside of the USA to serve the FOP community and connect individuals and families with resources and other FOP patients on a regional and national level. Questions? Please contact the IFOPA at [email protected].
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- Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- The Advocacy Series
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
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Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back to School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Special Needs Financial Planning
- Age Specific Tips for Navigating School and FOP
- Resources For Physical and Occupational Therapists
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- FOP Family Gatherings
- Ability Toolbox Program
- Resilient Living Program
- In Remembrance
- The Harold and Elaine Kaplan Quality of L.I.F.E. Awards