Resources for Support

Patients and Families

Resources for Support

When facing a new diagnosis knowing where to start on the path to accessing resources can be overwhelming. Beyond the medical challenges, there are many related issues to consider and address. The resources provided below are intended to support you as you navigate life with FOP.

The Resource Directory is a compiled list of resources at the state, national and global levels.

IFOPA Programs for the Family

provides a broad overview of the wide range of support and services available to the entire family.

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Just Diagnosed Resources

are for those who have recently been diagnosed with FOP or are new to the IFOPA.

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Pediatric Specific Resources

are geared towards meeting the needs of our younger community members and parents.

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Early Adulthood Specific Resources

offer information about the transition to managing care as an adult and areas of increased independence such as college or living alone.

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Later Adulthood Specific Resources

include helpful information for knowing your rights in the workplace or finding resources for support to maintain a healthy outlook without employment.

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Up-to-date Webinars

for a better understanding of specific resources available to you and your family.

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