Patients and Families
When facing a new diagnosis knowing where to start on the path to accessing resources can be overwhelming. Beyond the medical challenges, there are many related issues to consider and address. The resources provided below are intended to support you as you navigate life with FOP.
The Resource Directory is a compiled list of resources at the state, national and global levels.
IFOPA Programs for the Family
provides a broad overview of the wide range of support and services available to the entire family.Learn More
Just Diagnosed Resources
are for those who have recently been diagnosed with FOP or are new to the IFOPA.Learn More
Pediatric Specific Resources
are geared towards meeting the needs of our younger community members and parents.Learn More
Early Adulthood Specific Resources
offer information about the transition to managing care as an adult and areas of increased independence such as college or living alone.Learn More
Later Adulthood Specific Resources
include helpful information for knowing your rights in the workplace or finding resources for support to maintain a healthy outlook without employment.Learn More
for a better understanding of specific resources available to you and your family.Learn More