Patients and Families

Begin the process of educating your child about the importance of research by donating your child’s baby teeth to support FOP research. Email the FOP Biobank when the first loose tooth is noticed. A collection kit with instructions will be sent to you prior to the tooth falling out. Once the tooth naturally falls out, collect it and send it back.

Learn about the importance of oral health care and its impact on the person's overall well-being. 

The IFOPA values supporting families at all stages of their journey with FOP. For our pediatric community members, there may be a great deal of change to adapt to over the years and across the different support systems that will be critical to their development. We hope that the resources below can be used to support children and families as they educate others about their diagnosis and advocate for their needs.    

• Supporting Your Child During a Stressful Procedure
  
• Certificates of Recognition for Children
• FOP and School 
• Back to School Checklist
• Summer Family Activity Guide
• Kids with FOP and Sports
  
• Respite Care Example from Child Neurology Foundation
• Transitioning to an Adult Health Care Provider
• Explaining FOP to Children