Resilient Living Program

Patients and Families

Resilient Living Program

FOP impacts the entire family — it isn't restricted to stressing the individual with FOP. The Resilient Living program focuses on the emotional well-being of families — including siblings, caretakers, spouses and partners — giving them the skills to be able to bounce back from the challenges they face in life. Learn strategies of how to approach FOP and its challenges in a way that is productive rather than feeling helplessness. 


Watch the Intro to Resiliency Webinar

Learn about the 10 facets of resilience that serve as the foundation of the Resilient Living program and future opportunities to benefit from this IFOPA program. The webinar was presented by Hayley Stolzle, Resilience Program Coordinator at Turning Point and Hope Newport, Family Services Manager at the IFOPA. 

Watch the video

**The webinar was recorded live in English but can be viewed with translated subtitles. For directions on how to add subtitles in your preferred language visit this page.


Get involved in the Resilient Living Program


Watch for our posts on social media to implement resilient practices in your day-to-day living.


Take Part in our Focus on 5 Series to learn more about how you can use your senses as a way of promoting self-care in your day-to-day life.

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Learn how to incorporate habits that support your mental and physical well-being.

Watch the Series


Participate in the Friendship Over Pages Book Club to connect with other members of the community and learn more about practicing resilience.

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Check out our library of FOP Family resiliency resources

Energy Medicine Immune Boosting Techniques

5 Steps to Practicing Resilience with Your Child

10 Tips for Resilient Living

Resilient Living Video Playlist


This program is funded by a Global Genes RARE Patient Impact Grant.

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