Resilient Living Program

Patients and Families

Resilient Living Program

FOP impacts the entire family — it isn't restricted to stressing the individual with FOP. The Resilient Living program focuses on the emotional well-being of families — including siblings, caretakers, spouses and partners — giving them the skills to be able to bounce back from the challenges they face in life. Learn strategies of how to approach FOP and its challenges in a way that is productive rather than feeling helplessness. 


Watch the Intro to Resiliency Webinar

Learn about the 10 facets of resilience that serve as the foundation of the Resilient Living program and future opportunities to benefit from this IFOPA program. The webinar was presented by Hayley Stolzle, Resilience Program Coordinator at Turning Point and Hope Newport, Family Services Manager at the IFOPA. 

Watch the video

**The webinar was recorded live in English but can be viewed with translated subtitles. For directions on how to add subtitles in your preferred language visit this page.


Get involved in the Resilient Living Program


Watch for our posts on social media to implement resilient practices in your day-to-day living.


Explore our pain management series


our monthly peer support group for adults with FOP


our monthly peer support group for caregivers of individuals with FOP


Learn how to incorporate habits that support your mental and physical well-being.

Watch the Series


Explore our Sensory Self-Care Series: Focus on 5

Watch the Recordings

Check out our library of FOP Family resiliency resources

Energy Medicine Immune Boosting Techniques

5 Steps to Practicing Resilience with Your Child

10 Tips for Resilient Living

Resilient Living Video Playlist

This program is funded by a Global Genes RARE Patient Impact Grant.

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