Ability Toolbox Program

The IFOPA is excited to add the Ability Toolbox Program to the list of Family Service programs in 2019. The focus of this program is to empower individuals with FOP by promoting independence through the use of tools and home adaptations.   

Ways the Ability Toolbox Program Can Support You

INCREASING opportunities for independence and promoting higher levels of confidence.

ASSISTING community members with developing sustainable daily habits that promote decreased reliance on caregivers, and balance in the lives of families affected by FOP.

EMPOWERING people to solve problems by creating tools designed to meet their own unique needs.

Watch These Video Resources from the Ability Toolbox Program

The Ability Toolbox Presentation from the 2019 Family Gathering in Orlando, Florida is now online! Hear the FOP community member panelists discuss tools they use every day to maintain their independence during daily routines. See examples of a few tools from these different categories: Eating and Cooking, Toileting, Bathing/Showering, Dressing and Grooming, School and Workplace, Recreation and Hobbies, Medical and Preventative Tools, and Adaptations Around the Home. View the presentation here!

Learn about the importance of oral health and its impact on overall well-being in this FOP-specific dental webinar from the Ability Toolbox program. Hear recommendations from FOP dental expert Dr. Clive Friedman for preventative dental care during infancy, childhood, adolescence, and adult stages of living with FOP, including complications such as ankylosis of the jaw. Learn how FOP impacts your risk for oral disease, and view various tools and products that can assist you in decreasing those risks. Watch the recorded webinar here!

**The webinar was recorded live in English but can be viewed with translated subtitles

Get Involved in the Ability Toolbox Program

Watch for our weekly posts on social media to see featured tools and tips for staying independent during daily routines.


  1. Watch videos of community members demonstrating various tools on our YouTube channel.
  2. Learn from our larger FOP community as they share their feedback and recommendations at small in-person meetings and larger Family Gathering presentations in the US and around the world.
  3. Speak with the Family Services Coordinator, or one of our Tool Ambassadors, to have your questions about tool integration and home adaptations answered. Call +1 (913) 558-1879 or email Karen Kirchhoff, Family Services Coordinator, to learn more about the Ability Toolbox program.

See What the Ability Toolbox Program Accomplished in Its First Year

The Ability Toolbox Program was launched in 2019 with generous funding from The Radiant Hope Foundation, Regeneron Pharmaceuticals, Ipsen and Blueprint Medicines. The program made major strides in its first year. Click here to read all about it.

Coming Soon! A New Online Guidebook!

We're creating a new Online Guidebook featuring both manufactured tools, as well as homemade tools submitted by FOP community members. The Guidebook will be continuously updated with the latest tools that FOP community members find useful in their day-to-day lives.

Do you have a tool that you would like to share with the FOP Community? Email Karen Kirchhoff family services coordinator.

The Ability Toolbox program is made possible by grants from The Radiant Hope Foundation, Ipsen, Regeneron Pharmaceuticals, and Blueprint Medicines.


The IFOPA is able to offer Ability Toolbox: Everyday Tools for Independent Living thanks to generous support from the Radiant Hope Foundation, as well as Regeneron Pharmaceuticals, Ipsen and Blueprint Medicines.

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