Peer Support Group

The IFOPA's Peer Support Group for English-speaking adults with FOP is an opportunity for community members to meet monthly for a 90-minute session moderated by counseling psychologist Dr. Al Freedman, dad of a son who lived for 26 years with another rare disease.

The group provides opportunities for connection between community members by creating a safe space for socializing and sharing challenges related to life with FOP. The group moderator, Dr. Freedman, will offer suggestions and techniques to help navigate challenges that are brought up in group discussion.

Upcoming Meeting Dates (all meetings take place at 12 pm ET/6 pm CET

  • February 13
  • March 12
  • April 9
  • May 14
  • June 11
  • July 9
  • August 13
  • September 10
  • October 8
  • November 12
  • December 11



Meet Our Moderator

Albert Freedman, PhD, is a child, adolescent and family psychologist in independent practice.  Al provides counseling support for families affected by rare disease and complex medical conditions, and serves as a consultant to rare disease advocacy groups, biopharmaceutical companies, and health care organizations.  Al writes and speaks nationally and globally on the topic of the emotional experience of families affected by rare diseases and complex medical conditions. Al's son, Jack, lived with Spinal Muscular Atrophy for 26 years.

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