The Advocacy Series

Patients and Families

The Advocacy Series

The Advocacy Series

Overcoming Barriers to Independence, Agency and Communication

The IFOPA’s Advocacy Series connects people with FOP and their support networks to resources that help them voice their needs, and live as independently and healthily as possible.

This program has a strong focus on:

  • self-care
  • learning from other FOP community members
  • practical tools and resources for better mobility
  • strategies for communicating effectively with others

The Advocacy Series helps people and families overcome barriers to receiving the support, access, care and resources they need.

2022 Topics:

· Will Hayes (Sports Management), US
· Kim Shields (Social Work), US
· Patrick Doerr (Accounting), US
· Kathy Ford (Emergency Dispatch), US
· Luc Schroots (App Development), The Netherlands
· Ciske Faber (Human Resources), South Africa

  • Accessible Driving, Riding and Transportation Options

Three different resources are offered quarterly on topics important to the FOP Community:

  • Webinars
  • Podcasts
  • Community Panels

Check out previous topics from 2021


For more information about the program or to share your experience as an advocate, please contact Hope Newport, IFOPA Family Services Manager, or Karen Kirchhoff, Family Services Coordinator.

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