Rare Disease Day 2024

Spread Awareness. Spread Hope.

Join us on February 29 — the rarest day of the year — to spread awareness of rare diseases like FOP and increase the number of people fighting for a better future for everyone impacted by these conditions.

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How will you participate in Rare Disease Day?

For all rare disease communities, there’s hope in numbers. Participating in Rare Disease Day is a special opportunity to invite our friends, neighbors, coworkers, and loved ones to learn about the rare disease community.


On February 28 & 29 find shareable content for Rare Disease Day on our social media accounts.


Our personal stories are often the most powerful tools in spreading awareness

Share your own FOP story with the hashtag #RareDiseaseDay


When you give to the IFOPA, you’re funding vital research to bring us closer to treatments and a cure

Give Today

Whether you repost, share or give, you’re providing critical support to the FOP community!

Thank you for advancing our mission!

We’re so grateful for your support this Rare Disease Day and every day.
Together, we can create a more hopeful future for everyone impacted by FOP

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