It’s time to get ready for Rare Disease Day 2021!

With #RareDiseaseDay on February 28, February is the perfect month to join together with the IFOPA and rare disease organizations around the world to raise awareness of the 6,000 rare diseases.

Ways to Share Your Rare in February: 

  1. Frame your Facebook profile picture for #RareDiseaseDay 
  2. Raise awareness by sharing important rare disease facts which will be available on the IFOPA’s Facebook, Twitter, Instagram and LinkedIn pages the week of February 22

  3. Be a part of the worldwide campaign when you use the hashtags #cureFOP and #RareDiseaseDay when making your FOP and rare disease posts

  4. Every year thousands of events are organized around the world during the month of February to recognize Rare Disease Day. This year's events are virtual so anyone can participate. Check out these upcoming events:  

    • February 17 to 24 - Individual State Rare Disease Day Events sponsored by the National Organization of Rare Diseases (NORD) Rare Action Network. Not every state has an event. More information at https://rareaction.org/events

    • February 25 - EveryLife Foundation Rare Disease Congressional Caucus Briefing (registration coming soon)

    • February 26 - IFOPA Family Services Webinar (registration coming soon)

    • March 1, 10:30 am to 5:30 pm EST - Rare Disease Day at the National Institutes of Health (NIH)More information and registration

    • March 2, 11 am to 1 pm EST - Penn Orphan Disease Center Rare Disease Day Webinar - Patients: The Heroes of Rare Disease ResearchMore information and registration

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