Rare Disease Day 2025

Spread Awareness. Spread Hope.

Join us on February 28 to spread awareness of rare diseases like FOP and increase the number of people fighting for a better future for everyone impacted by these conditions.

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How will you participate in Rare Disease Day?

For all rare disease communities, there’s hope in numbers. Participating in Rare Disease Day is a special opportunity to invite our friends, neighbors, coworkers, and loved ones to learn about the rare disease community.

Repost

From February 18-28, find shareable content for Rare Disease Day on our social media accounts.

Share

Our personal stories are often the most powerful tools in spreading awareness

Share your own FOP story with the hashtag #RareDiseaseDay

Give

When you give to the IFOPA, you’re funding vital research to bring us closer to treatments and a cure

Give Today

 

Mark your calendar for February 28 at 2 PM ET and tune in to our Facebook Live event, A Conversation on Rare Disease

We’re bringing together two incredible voices in the rare disease community for this conversation facilitated by Hope Newport, IFOPA’s Family Services Manager:

Don’t miss this inspiring discussion on advocacy, resilience, and the power of the rare disease community!

RSVP here.


Thank you for advancing our mission!

We’re so grateful for your support this Rare Disease Day and every day.
Together, we can create a more hopeful future for everyone impacted by FOP


Special Thanks to Our Platinum Sponsor

 

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