Patients and Families
Read Stories of Living Well with FOP
Meet other people living with FOP and get inspired by their stories of strength and courage. Check out Family Blogs and Websites and read their stories below. Learn about their struggles and determination to live the life they choose.
Will you share your story and help inspire others? We'd love to hear from you. Please complete our online form.
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Meet Other Patients
- Patient Directory and Registry
- Managing Your Healthcare
- Connecting with the FOP Community
- Resources for Support
- Ability Toolbox Program
- Resilient Living Program
- The Harold and Elaine Kaplan Quality of L.I.F.E. Award
- In Remembrance
