Patients and Families
Read Stories of Living Well with FOP
Meet other people living with FOP and get inspired by their stories of strength and courage. Check out Family Blogs and Websites and read their stories below. Learn about their struggles and determination to live the life they choose.
Will you share your story and help inspire others? We'd love to hear from you. Please complete our online form.
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- Meet Other Patients
- Patient Directory and Registry
- The Advocacy Series
- Managing Your Healthcare
- Connecting with the FOP Community
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Resources for Support
- IFOPA Programs for the Family
- Newly Diagnosed Resources
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Pediatric-Specific Resources
- Supporting Your Child During a Stressful Procedure
- FOP and School
- Back to School Checklist
- Summer Family Activity Guide
- Kids with FOP and Sports
- Certificates of Recognition for Children
- Transitioning to an Adult Health Care Provider
- Explaining FOP to Children
- Special Needs Financial Planning
- Age Specific Tips for Navigating School and FOP
- Early Adulthood Resources
- Later Adulthood Resources
- Webinars
- Ability Toolbox Program
- FOP Family Gatherings
- Resilient Living Program
- In Remembrance
- The Harold and Elaine Kaplan Quality of L.I.F.E. Awards
