Patients and Families
“Asking for what you need is one of the bravest things that you’ll ever do.” - Brené Brown
The Family Services staff at the IFOPA connects families to resources and support within the FOP community and beyond. We love working with families to learn about their specific needs and the barriers to meeting those needs. As a way to serve you better, we are excited to launch The Advocacy Series.
Our hope for The Advocacy Series is to:
- Deepen the communication between the IFOPA and community members and learn more about the factors keeping you or your loved one with FOP from getting their needs met
- Educate individuals with FOP and their support network on ways to be an effective advocate
- Create opportunities for community members to connect and learn from one another
- Combine IFOPA resources and community knowledge to create a workbook for people to use as they navigate their own advocacy opportunities
2021 Program Resources:
Sign up for email updates and additional information about future Advocacy Series programming
For more information about the program or to share your experience as an advocate, please contact Hope Newport, IFOPA Family Services Manager, or Karen Kirchhoff, Family Services Coordinator.