Patients and Families
“Asking for what you need is one of the bravest things that you’ll ever do.” - Brené Brown
The Family Services staff at the IFOPA connects families to resources and support within the FOP community and beyond. We love working with families to learn about their specific needs and the barriers to meeting those needs. As a way to serve you better, we are excited to launch The Advocacy Series.
Our hope for The Advocacy Series is to:
- Deepen the communication between the IFOPA and community members and learn more about the factors keeping you or your loved one with FOP from getting their needs met
- Educate individuals with FOP and their support network on ways to be an effective advocate
- Create opportunities for community members to connect and learn from one another
- Combine IFOPA resources and community knowledge to create a workbook for people to use as they navigate their own advocacy opportunities
2021 Program Resources:
| Advocacy: You Can Make A Difference: We’ll discuss how to build upon your strengths to communicate your needs and create an action plan for more effective problem-solving. | Listen to the Advocacy: You Can Make a Difference podcast |
| Watch the Advocacy: You Can Make a Difference community panel recording | |
| Watch the Advocacy: You Can Make a Difference resource webinar | |
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Advocacy At All Ages: Advocacy begins by empowering children to overcome challenges rather than enabling them to rely on others. Learn how children, teens and young adults can start advocating for their needs at different developmental stages. |
Listen to the Advocacy at All Ages podcast |
| Watch the Advocacy at All Ages community panel recording | |
| Watch the Advocacy at All Ages Resource Webinar | |
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Advocating in a Medical Setting: Take control of your medical journey by learning the tools you need to be an effective member of your health care team. |
Listen to the Advocating in a Medical Setting podcast |
| Watch the Advocating in a Medical Setting Community Panel | |
| Watch the Advocating in a Medical Setting Resource Webinar | |
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Advocating for Mobility and Independence: Learn how to access the tools, equipment and transportation you need to get outside and engage with those around you. |
Listen to the Advocating for Mobility and Independence Podcast |
| Watch the Advocating for Mobility and Independence Community Panel | |
| Register for the Advocating for Mobility and Independence Resource Webinar |
Sign up for email updates and additional information about future Advocacy Series programming
QUESTIONS?
For more information about the program or to share your experience as an advocate, please contact Hope Newport, IFOPA Family Services Manager, or Karen Kirchhoff, Family Services Coordinator.
