Patients and Families
FOP Awareness Video
Change My Life: A Thank You Video
FOP Facts and Insights
This 15-part video series offers an abundance of information and advice for people with FOP and their family members, physicians and caregivers. Produced in 2009, the videos include information by Frederick Kaplan, M.D. and Dr. Eileen Shore, Ph.D. of the University of Pennsylvania School of Medicine, as well as IFOPA community member Lori Henrotay, who helped produce the videos for the organization.
- Series Overview
- What is FOP?
- Clinical Features
- FOP Misdiagnosis: Issues and Consequences
- Treatment Guidelines and Considerations
- Pain Management
- Special Medical Considerations
- FOP Gene Discovery
- The FOP Research Lab
- Collaborative Research
- Hearing Impairment
- Preventative Oral Hygiene
These are two videos from workshops presented for FOP individuals and families at the IFOPA 25th Anniversary event in 2013.