Donate Connect
SEARCH

FOP News

An Important Update from Regeneron Regarding the LUMINA-1 Trial

Posted by · June 04, 2021 10:32 AM
Read more Share

Palovarotene Regulatory Submission Accepted

Posted by · May 28, 2021 4:47 PM
Read more Share

FOP Brasil Takes on Newborn Screening

Posted by · May 20, 2021 12:21 PM
Read more Share

The Economist Intelligence Unit Releases Briefing Paper on Rare Bone Diseases

Posted by · April 30, 2021 4:09 PM
Read more Share

International Clinical Council on FOP Releases Updated Treatment Guideline

Posted by · April 15, 2021 9:26 AM
Read more Share

Coronavirus (COVID-19) Guidelines for FOP Families

Posted by · March 19, 2021 12:36 PM

Updated March 18, 2021

Read more Share

New Awareness and Education Programs Launched for Health Care Providers

Posted by · March 11, 2021 9:38 AM

Regeneron and Ipsen support educational opportunities

Read more Share

The Cost of Rare Diseases in the US is Nearly $1 Trillion

Posted by · February 25, 2021 4:37 PM

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

Read more Share

Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Posted by · February 25, 2021 2:05 PM
Read more Share

Multiple Kinase Inhibitors Being Tested to Treat FOP

Posted by · January 19, 2021 12:12 PM

Four Kinase Inhibitors Currently in FOP Clinical Trials

Read more Share

Learn More

Is it FOP? Just Diagnosed Registry

Make a Difference

Donate Connect Fundraise
Sign in with Facebook, Twitter or email.
Site by Mosaic • Created with NationBuilder
Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter