FOP News

An Important Update from Ipsen Regarding the Palovarotene Trial for Children Under 14

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Important Announcement about the MOVE Trial for Children Under 14

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Exciting News from BioCryst Pharmaceuticals

BioCryst launches Phase 1 trial for FOP

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An Important Announcement from Blueprint Medicines & Ipsen

Ipsen and Blueprint enter exclusive agreement in FOP

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ASBMR 2019 Presentations

11 FOP Presentations Will Be Made At The Annual Meeting

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Dr. Maurizio Pacifici’s Research Inspired Two Clinical Trials

Learn how research on RAR gamma agonists motivated the palovarotene clinical trials  

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Translational Research Program in Pediatric Orthopaedics, The Children's Hospital of Philadelphia (CHOP)

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Interested in Participating in an FOP Research Study?

Blueprint Medicines conducting a one-time research study and looking for volunteers

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A message from the ICC on FOPCon

Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)

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Updated FOP Treatment Guidelines Released

The 2019 edition of the FOP Treatment Guidelines is now available

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