Ipsen's scientific paper on its FOP Natural History Study (NHS) was published on September 23, 2022. The NHS was a 3-year observational study in which 114 individuals with FOP participated. The study assessed the association of FOP flare-ups and extra-skeletal bone growth with functional impairment.
The paper was published in the Genetics in Medicine Journal. We are grateful to the 114 people with FOP who participated in this first-of-its-kind study.