FOP News - IFOPA - International Fibrodysplasia Ossificans Progressiva Association

FOP News

IPSEN Publishes Burden of Illness Study and Releases Plain Language Summary

Posted by · October 31, 2022 1:12 PM

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FDA Advisory Committee Meeting for Palovarotene Capsules Postponed

Posted by · October 25, 2022 4:23 PM

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Ipsen's FOP Natural History Study Published in the Genetics in Medicine Journal

Posted by · September 30, 2022 3:49 PM

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18 FOP and HO Sessions and Posters Featured at the ASBMR 2022 Annual Meeting

Posted by · September 24, 2022 3:29 PM

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BioCryst Pharmaceuticals Granted Orphan Drug Designation from U.S. FDA for BCX9250

Posted by · September 01, 2022 9:04 AM

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You’re Invited to Submit Written Testimony to the US FDA

Posted by · August 24, 2022 10:06 AM

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Ipsen's Resubmission to the US Food & Drug Administration is Accepted

Posted by · June 29, 2022 6:50 AM

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BioCryst Pharmaceuticals Receives Fast Track Designation from U.S. FDA for BCX9250

Posted by · June 22, 2022 11:39 AM

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Important Updates in FOP Clinical Trials

Posted by · June 21, 2022 1:23 PM

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Updated Coronavirus (COVID-19) Precautions & Guidance for FOP Patients & Families

Posted by · June 06, 2022 1:26 PM

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