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Coronavirus (COVID-19) Guidelines for FOP Families

Posted by · March 19, 2021 12:36 PM

Updated March 18, 2021

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New Awareness and Education Programs Launched for Health Care Providers

Posted by · March 11, 2021 9:38 AM

Regeneron and Ipsen support educational opportunities

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The Cost of Rare Diseases in the US is Nearly $1 Trillion

Posted by · February 25, 2021 4:37 PM

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Posted by · February 25, 2021 2:05 PM
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Multiple Kinase Inhibitors Being Tested to Treat FOP

Posted by · January 19, 2021 12:12 PM

Four Kinase Inhibitors Currently in FOP Clinical Trials

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Coronavirus (COVID-19) Guidelines for FOP Families (Updated December 30, 2020)

Posted by · January 04, 2021 9:21 AM
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BioCryst Announces Positive Phase 1 Results with BCX9250

Posted by · December 21, 2020 11:07 AM
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International Clinical Council on FOP Releases Editorial on Clinical Trials for FOP

Posted by · December 04, 2020 10:52 AM
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Regeneron LUMINA-1 Trial Announcement

Posted by · October 31, 2020 11:32 AM
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"STOPFOP” Clinical Trial has Restarted Recruitment

Posted by · October 01, 2020 4:14 PM
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