FOP News

FOP Brasil Takes on Newborn Screening

Read more Share

The Economist Intelligence Unit Releases Briefing Paper on Rare Bone Diseases

Read more Share

International Clinical Council on FOP Releases Updated Treatment Guideline

Read more Share

Coronavirus (COVID-19) Guidelines for FOP Families

Updated March 18, 2021

Read more Share

New Awareness and Education Programs Launched for Health Care Providers

Regeneron and Ipsen support educational opportunities

Read more Share

The Cost of Rare Diseases in the US is Nearly $1 Trillion

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

Read more Share

Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Read more Share

Multiple Kinase Inhibitors Being Tested to Treat FOP

Four Kinase Inhibitors Currently in FOP Clinical Trials

Read more Share

Coronavirus (COVID-19) Guidelines for FOP Families (Updated December 30, 2020)

Read more Share

BioCryst Announces Positive Phase 1 Results with BCX9250

Read more Share

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter