FOP News

Breaking News from Ipsen Regarding their US FDA Submission for Palovarotene

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An Important Update from Regeneron Regarding the LUMINA-1 Trial

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Palovarotene Regulatory Submission Accepted

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FOP Brasil Takes on Newborn Screening

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The Economist Intelligence Unit Releases Briefing Paper on Rare Bone Diseases

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International Clinical Council on FOP Releases Updated Treatment Guideline

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Coronavirus (COVID-19) Guidelines for FOP Families

Updated March 18, 2021

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New Awareness and Education Programs Launched for Health Care Providers

Regeneron and Ipsen support educational opportunities

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The Cost of Rare Diseases in the US is Nearly $1 Trillion

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

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