FOP News

International Clinical Council on FOP Releases Updated Treatment Guideline

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Coronavirus (COVID-19) Guidelines for FOP Families

Updated March 18, 2021

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New Awareness and Education Programs Launched for Health Care Providers

Regeneron and Ipsen support educational opportunities

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The Cost of Rare Diseases in the US is Nearly $1 Trillion

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

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Multiple Kinase Inhibitors Being Tested to Treat FOP

Four Kinase Inhibitors Currently in FOP Clinical Trials

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Coronavirus (COVID-19) Guidelines for FOP Families (Updated December 30, 2020)

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BioCryst Announces Positive Phase 1 Results with BCX9250

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International Clinical Council on FOP Releases Editorial on Clinical Trials for FOP

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Regeneron LUMINA-1 Trial Announcement

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