FOP News

The Cost of Rare Diseases in the US is Nearly $1 Trillion

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

Read more Share

Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Read more Share

Multiple Kinase Inhibitors Being Tested to Treat FOP

Four Kinase Inhibitors Currently in FOP Clinical Trials

Read more Share

Coronavirus (COVID-19) Guidelines for FOP Families (Updated December 30, 2020)

Read more Share

BioCryst Announces Positive Phase 1 Results with BCX9250

Read more Share

International Clinical Council on FOP Releases Editorial on Clinical Trials for FOP

Read more Share

Regeneron LUMINA-1 Trial Announcement

Read more Share

"STOPFOP” Clinical Trial has Restarted Recruitment

Read more Share

New Research Opportunity for Individuals with FOP

Read more Share

Tin Soldiers Launches Global CME Series on FOP

You're invited to share this series with your local health care professionals

Read more Share

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter