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Breaking News from Ipsen Regarding their US FDA Submission for Palovarotene

Posted by · August 13, 2021 9:10 AM
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An Important Update from Regeneron Regarding the LUMINA-1 Trial

Posted by · June 04, 2021 10:32 AM
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Palovarotene Regulatory Submission Accepted

Posted by · May 28, 2021 4:47 PM
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FOP Brasil Takes on Newborn Screening

Posted by · May 20, 2021 12:21 PM
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The Economist Intelligence Unit Releases Briefing Paper on Rare Bone Diseases

Posted by · April 30, 2021 4:09 PM
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International Clinical Council on FOP Releases Updated Treatment Guideline

Posted by · April 15, 2021 9:26 AM
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Coronavirus (COVID-19) Guidelines for FOP Families

Posted by · March 19, 2021 12:36 PM

Updated March 18, 2021

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New Awareness and Education Programs Launched for Health Care Providers

Posted by · March 11, 2021 9:38 AM

Regeneron and Ipsen support educational opportunities

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The Cost of Rare Diseases in the US is Nearly $1 Trillion

Posted by · February 25, 2021 4:37 PM

EveryLife Foundation for Rare Diseases Releases Results of Its Burden of Illness Study

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Ipsen Launches The World's Rarest Dictionary with a Word from the FOP Community

Posted by · February 25, 2021 2:05 PM
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