FOP News - IFOPA - International Fibrodysplasia Ossificans Progressiva Association

FOP News

Frequently Asked Questions (FAQ) About Mirum and the PROGRESS Trial

Posted by · May 13, 2026 9:45 PM

Read more Share

Important Announcements about Zilurgisertib Clinical Trial

Posted by · May 06, 2026 6:33 PM

Read more Share

International Clinical Council on FOP Releases Updated Editorial on Clinical Trials for FOP

Posted by · February 25, 2026 8:31 AM

Read more Share

Ipsen Shares a Follow-Up Letter About the Termination of the FALKON Phase 2 Clinical Trial

Posted by · January 09, 2026 3:40 PM

Read more Share

Ipsen Issues an Important Announcement About the Results of the FALKON Trial

Posted by · December 19, 2025 8:04 AM

Read more Share

Medical Guidelines for FOP Published in JBMRPlus

Posted by · October 29, 2025 4:39 PM

Read more Share

Breaking News from Regeneron Regarding the OPTIMA Phase 3 Clinical Trial

Posted by · September 17, 2025 8:13 AM

Read more Share

ANDECAL Doses First Patient

Posted by · January 23, 2025 2:13 PM

Read more Share

Urge Your Senator to Renew the Priority Review Voucher (PRV) Program

Posted by · December 10, 2024 8:53 AM

Read more Share

UPenn's Dr. Eileen Shore Receives Prestigious Award from ASBMR

Posted by · August 30, 2024 4:00 PM

Read more Share

Learn More

Is it FOP? Just Diagnosed Registry

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter

X