News

The IFOPA Celebrates the Second Year of the FOP Registry

2017 FOP Registry Annual Report

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Making Childhood the Top Priority

Learning to adjust

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New Fundraising Video Available for FOP Fundraisers

Watch, Share, Raise Funds

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The International Clinical Council on FOP

Optimizing care for the FOP patient

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Rare Disease Day 2018 - 4.5 Days of Research Funded!

Giving hope to the community

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Alex Rodriguez Talks Sharing, Studying…and Serious Baking

“It’s So Helpful to Share Tips for Adaptations and Accommodations…”

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Serving the FOP Community—IFOPA Board Meeting Wrap Up

by Amy Gordon, IFOPA Board Chair

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Team #cureFOP to Ride in the Million Dollar Bike Ride

Don't miss this opportunity to raise funds for a new FOP research grant!

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Big Dreams, Lofty Ambitions

Claudia Cabrera continues to look towards the future

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BioCryst Pharmaceuticals Announcement of Potential Drug Treatment

Exploring treatment for FOP

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