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Give While You Shop

Shop for dad and help the IFOPA

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FOP Registry Adds Four New Languages

The FOP Registry launched in four more languages - German, Italian, Portuguese and Spanish

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Call for Proposals—IFOPA Competitive Research Grant

The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals

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Brian Harwell Talks Traveling with FOP

Learn how to travel comfortably and be prepared for anything from our very own globetrotter, as shared with the IFOPA by Brian Harwell.

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Grantee Profile

IFOPA and Canadian FOP Network Partnering to Fund FOP Research 

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The IFOPA Pinterest Board Goes Live

Share your tips.

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Happy Mother's Day

Everyone at the IFOPA wishes our wonderful FOP moms a very happy Mother’s Day. 

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Rebecca and Kyle Love their “One Rare Boy”

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

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Prep Now for Next School Year

Specialized School Plan Tips Shared by Rory Otto

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Clementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP

An important announcement from Clementia

The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.

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