News

Meet FOP Connect Mentor Cassie Eckart

Cassie Eckart Stays Positive and Helps Problem Solve

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IFOPA Active in Supporting International Meetings in Germany and Russia

Learn how your support of the IFOPA helps families around the world

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Dr. Maurizio Pacifici’s Research Inspired Two Clinical Trials

Learn how research on RAR gamma agonists motivated the Palovarotene clinical trials  

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Translational Research Program in Pediatric Orthopaedics, The Children's Hospital of Philadelphia (CHOP)

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FOP Fun Day in the Pacific Northwest

Raising awareness and fundraising to help #cureFOP in Gig Harbor, Washington

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What's a Biosample and How Can It Help FOP Research?

Learn How You Can Participate in the FOP Biobank

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FDA Listening Session on FOP

Read the FDA Report

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ACT for FOP Grant Program Now in its 5th Year

Advance Research - Help Fund ACT for FOP Grants

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Million Dollar Bike Ride Fundraising Totals Are In

Team#cureFOP raises over $79,000 for New FOP Research Grants in the 2019 Million Dollar Bike Ride 

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Natural History Study Data Shared With The FOP Registry

Data sharing benefits the FOP community

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