New This Year at the 2019 FOP Family Gathering

Here's a sneak peak at what's new at the 2019 Family Gathering!

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FOP Registry Insights Shared at the RARE Drug Development Symposium

Registry participation is encouraged to help advance FOP research

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For One Rare Boy

Kelly Griego competes to raise FOP awareness and support the Wallace family

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Middle Schoolers Make a Difference for FOP Families

Congrats to Team Sugar Rush for winning Destination Imagination regionals and state. Thank you for raising awareness of FOP!

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Two New Recorded Webinars Available on

Watch and Learn

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IFOPA Resilient Living Update

The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant

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Interested in Participating in an FOP Research Study?

Blueprint Medicines conducting a one-time research study and looking for volunteers

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A message from the ICC on FOPCon

Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)

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Transition to Adult Health Care Provider Webinar

Join us for the Transition to Adult Health Care Provider Webinar

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2019 FOP Family Gathering Registration & Wait List Now Open

Register today for the 2019 FOP Family Gathering!

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