News

A message from the ICC on FOPCon

Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)

Read more Share

Transition to Adulthood Webinar

Join us for the Transition to Adulthood Webinar

Read more Share

2019 FOP Family Gathering Registration & Wait List Now Open

Register today for the 2019 FOP Family Gathering!

Read more Share

Disney Accessibility and Planning Webinar

Register Now for the May Webinar - Disney Accessibility and Planning

Read more Share

New Biobank Generates Excitement for Research

“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”

Read more Share

High School Club in South Korea Sending Support to the FOP Community

Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.

Read more Share

We're Grateful for our FOP Registry Sponsors

We are very pleased to announce the IFOPA has secured FOP Registry sponsorship! 

Read more Share

New Friends of the IFOPA Busy Spreading FOP Awareness

"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."

Read more Share

An Intro to Resiliency Webinar

Join us for the Intro to Resiliency Webinar

Read more Share

FOP Mouse Model Now Available to Researchers

The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.

Read more Share

Sidebar Widget

empty_image_16x9.jpg

Donec rutrum ante velit, vel tristique mauris consectetur eu. Aenean a malesuada tellus, at vulputate sem. Donec et nunc vel nisi efficitur fringilla. Aliquam sed lacus ligula. Proin non consequat purus, vel dignissim nunc.


Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter