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‘This Assistance Has Been Life-Changing’

Posted by · October 24, 2023 12:59 AM
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Regeneron Publishes Peer-Reviewed Results of Phase 2 LUMINA-1 Clinical Trial

Posted by · September 29, 2023 7:01 PM
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Ipsen CEO Shares Letter with FOP Community

Posted by · August 26, 2023 6:39 AM
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International Clinical Council on FOP Publishes Statement on Palovarotene

Posted by · August 24, 2023 11:06 AM
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Head Back to School with Resources to Educate and Inform About FOP

Posted by · August 22, 2023 11:15 AM
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U.S. FDA Approves Palovarotene Capsules as a Treatment for FOP

Posted by · August 16, 2023 4:45 PM
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What's New with In Pursuit of a Cure 2023?

Posted by · August 15, 2023 4:27 PM
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Join Us for In Pursuit of a Cure 2023 —Relentless

Posted by · August 03, 2023 8:29 AM
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Gather With Fellow FOP Families at Camp

Posted by · July 28, 2023 10:11 AM

The opportunity awaits to take part in a joy-filled, inclusive camp experience at Weekend Family Camp in the summer of 2024.

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European Commission Does Not Grant Marketing Authorization Approval for Palovarotene as a Treatment for FOP

Posted by · July 20, 2023 9:43 AM
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