News

Lifetime Grant Amount Increases for the Harold & Elaine Kaplan Quality of L.I.F.E. Awards

Those Living With FOP Now Eligible for up to $1,800 USD

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Coronavirus (COVID-19) Precautions for FOP Families (Updated March 27, 2020)

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Important Press Release and Letter from Ipsen Announcing They Will Reinitiate Dosing in the MOVE Trial

Dosing to begin again in patients 14 years of age and older currently enrolled in the trial

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STOPFOP Recruitment Paused

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International Clinical Council on FOP Issues COVID-19 Precautions for FOP Families

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Classic Car Drives Fundraising Support for the FOP Community

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Coronavirus (COVID-19) Precautions for FOP Families (Updated March 13, 2020)

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2020 Family Gathering

2020 Family Gathering Preview

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2020 Family Gathering Information for Spanish Speaking Attendees

2020 Family Gathering Preview

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Help Us Connect and Serve Siblings

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