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2016 Competitive Research Grant Program Winners Announced

The IFOPA is pleased to announce the three recipients of nearly $108,000 in research grants through its Competitive Research Grants (CRG) Program

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Remember the IFOPA During the Holidays

This holiday season, it’s easier than ever to give back

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IFOPA Hosts Drug Development Forum

The IFOPA hosted the second Drug Development Forum Oct. 24 to 25 in Boston, Massachusetts

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Talbots Fundraiser for FOP

Talbots patrons got a jump start on their holiday shopping – all to benefit The IFOPA! 

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Team Addgene Runs Superhero 5K

Thank you to team Addgene who ran the Superhero 5K in Cambridge, Massachusetts in honor of AJ! 

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Registry Will Soon Be Translated into Six Languages

Meeting the needs of the global FOP community

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Join the IFOPA and Clementia for an Important Webinar

Phase 2 Trial Webinar

We hope you’ll join us Wednesday, Nov. 30, 2016, 11 am to noon Eastern Time, for an important webinar presented by Clementia on the top-line results from the phase 2 trial of palovarotene for treatment of patients with fibrodysplasia ossificans progressiva. 

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Lincoln's Legacy

In honor of ten-year-old Lincoln Wheelock, the 7th Annual Lincoln’s Legacy Run was held October 16, in Des Moines, Iowa 

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IFOPA Supports Fundraisers with Experienced Staff and New Digital Resources

“In Honor Of” fundraising increases impact of grassroots campaigns

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IFOPA Welcomes DDF Attendees

Second Drug Development Forum 

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