News

New FOP Clinical Trial to Begin in Japan

The IFOPA is encouraged to see a clinical trial for FOP beginning in Japan.

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Heart and Mind

Tim and Debbie Hazlett Reflect on Their 18-Year Journey with FOP

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Share Your FOP Story

A new feature on the IFOPA website makes it easy to share your unique FOP story

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Team #cureFOP Ideas for Summer Fundraising

Join Team #cureFOP and turn your favorite summer activity into a fundraising opportunity for the IFOPA.

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Tips for Getting Your Wheelchair Approved

Kristi Gonzales shares good ideas for success

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New Pinterest Board: Play and Recreation

Share Your Favorite Summer Play and Recreation Products on the IFOPA’s Pinterest Page

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Enroll in the FOP Registry

It’s important to FOP research that everyone who can participate in the Registry enrolls. Nicky Williams explains why she enrolled her daughter.

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"There’s Hope Based in Momentum"

Evelyn Mann “Can do this…”

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FOP Research at the University of Michigan

IFOPA Board Member, Gary McGuire, and his daughter, Natalie, recently visited Dr. Ben Levi at his lab to discuss the FOP research being performed at the University of Michigan.

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Clementia Announces Symposium at the 8th International Conference on Children's Bone Health (ICCBH)

An important announcement from Clementia

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