Posted by Merritt Neil · March 28, 2017 12:00 PM
An important announcement from Clementia
The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.
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Posted by Merritt Neil · March 15, 2017 12:00 PM
The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.
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Posted by Merritt Neil · March 09, 2017 8:56 PM
Easy ideas for getting involved
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Posted by Merritt Neil · March 09, 2017 8:55 PM
Share your ideas
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Posted by Merritt Neil · March 09, 2017 8:55 PM
Chrissy Flexer Explains the History and Heart of Bingo for a Cure!
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Posted by Merritt Neil · March 09, 2017 8:55 PM
Putting a disabled teen in the driver's seat
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Posted by Merritt Neil · March 09, 2017 8:49 PM
We appreciate their involvement
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Posted by Merritt Neil · March 09, 2017 4:45 PM
Bid farewell and send your own message of thanks to the IFOPA staff
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Posted by Merritt Neil · March 09, 2017 4:45 PM
March is filled with important fundraising events
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Posted by Merritt Neil · March 09, 2017 4:45 PM
The Center for Research in FOP and Related Disorders shares a message of appreciation for recent grant funding from the IFOPA.
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