News

Call for Proposals—IFOPA Competitive Research Grant

The International FOP Association is pleased to announce the 2017 Call for FOP Research Proposals

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Brian Harwell Talks Traveling with FOP

Learn how to travel comfortably and be prepared for anything from our very own globetrotter, as shared with the IFOPA by Brian Harwell.

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Grantee Profile

IFOPA and Canadian FOP Network Partnering to Fund FOP Research 

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The IFOPA Pinterest Board Goes Live

Share your tips.

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Happy Mother's Day

Everyone at the IFOPA wishes our wonderful FOP moms a very happy Mother’s Day. 

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Rebecca and Kyle Love their “One Rare Boy”

One Family’s FOP Journey and How They’re Raising Awareness—and Raising Funds

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Prep Now for Next School Year

Specialized School Plan Tips Shared by Rory Otto

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Clementia Announces Preliminary Results of its Phase 2 Trial in Treatment of FOP

An important announcement from Clementia

The IFOPA is pleased to share this announcement from Clementia Pharmaceuticals: Top-line Results from Phase 2 Trial of Palovarotene for Treatment of Patients with FOP. Read more.

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Dr. Fred Kaplan To Receive NORD's Rare Impact Award

The National Organization for Rare Disorders (NORD) named Dr. Fred Kaplan among its 2017 honorees.

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Two Important Ways You Can Be Part of Rare Disease Day on Feb. 28

Easy ideas for getting involved

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