See the key areas the IFOPA plans to focus on over the next three years

The IFOPA and FOP Friends^® UK Fund New Research at University of Oxford

Potentially Promising Treatment for FOP

We are pleased to share a few exciting updates on our ongoing work to help improve the lives of people with FOP. 

College Student Faces Challenges Head On 

Michelle Davis Looks Back on 2016

Special Matching Gift Opportunity for Year-End IFOPA Supporters

21st Century Cures Legislation Signed by President Obama

On December 7, the Senate followed the House of Representative's lead and signed the 21^st Century Cures bill which is focused on developing treatments and cures for rare diseases; President Obama signed it on December 13. 

Growing our ability to deliver on the IFOPA's mission

Approval of 3 New Sites!

The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts. 

The weekend of November 4, 2016, found members of the FOP community gathered in St. Louis, Missouri