Kim Shields is Determined to “Keep Going”

Defying Limitations, Kim Shields Encourages FOP’ers to “Keep Going”

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Grantee Profile

The IFOPA and FOP Friends® UK Fund New Research at University of Oxford

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Regeneron Shares Updates on its Ongoing FOP Research Program

Potentially Promising Treatment for FOP

We are pleased to share a few exciting updates on our ongoing work to help improve the lives of people with FOP. 

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Kyle McWilliams is Up to the Challenge

College Student Faces Challenges Head On 

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Reflections on the Year: 2016

Michelle Davis Looks Back on 2016

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Generous Matching Gift

Special Matching Gift Opportunity for Year-End IFOPA Supporters

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Bipartisan Support

21st Century Cures Legislation Signed by President Obama

On December 7, the Senate followed the House of Representative's lead and signed the 21st Century Cures bill which is focused on developing treatments and cures for rare diseases; President Obama signed it on December 13. 

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Exciting Changes for 2017

Growing our ability to deliver on the IFOPA's mission

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Three new Clementia sites now open for Part B of the Phase 2 Open-label Extension Trial

Approval of 3 New Sites!

The participation of individuals living with FOP in clinical studies and trials is key to FOP drug development efforts. 

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First Ever Regional Gathering Draws FOP Community to St. Louis

The weekend of November 4, 2016, found members of the FOP community gathered in St. Louis, Missouri

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