ABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).

After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinars on each of these trials (please register for each separately). 

Making an impact one fundraiser at a time

The band Semi Good Lookin' will represent Blueprint Medicines at the 2018 Battle of the Biotech Bands (BoBB) on the evening of May 9 in Boston, Massachusetts. The event is an amazing opportunity for biotech and pharmaceutical companies throughout Boston, to partner with architecture, design, and building professionals, for the sake of rocking out and raising money for very worthy organizations. 

2017 FOP Registry Annual Report

Learning to adjust

Watch, Share, Raise Funds

Optimizing care for the FOP patient

Giving hope to the community

“It’s So Helpful to Share Tips for Adaptations and Accommodations…”