Posted by Merritt Neil · June 26, 2019 4:24 PM
Here's a sneak peak at what's new at the 2019 Family Gathering!
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Posted by Merritt Neil · June 24, 2019 4:23 PM
Registry participation is encouraged to help advance FOP research
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Posted by Merritt Neil · June 24, 2019 1:13 PM
Kelly Griego competes to raise FOP awareness and support the Wallace family
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Posted by Merritt Neil · June 24, 2019 9:54 AM
Congrats to Team Sugar Rush for winning Destination Imagination regionals and state. Thank you for raising awareness of FOP!
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Posted by Merritt Neil · June 17, 2019 9:30 AM
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Posted by Merritt Neil · June 14, 2019 5:13 PM
The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant
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Posted by Merritt Neil · May 31, 2019 4:58 PM
Blueprint Medicines conducting a one-time research study and looking for volunteers
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Posted by Merritt Neil · May 24, 2019 10:43 AM
Posted on behalf of the Clinical Trials Committee of the International Clinical Council on FOP (ICC)
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Posted by Merritt Neil · May 08, 2019 4:21 PM
Join us for the Transition to Adult Health Care Provider Webinar
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Posted by Merritt Neil · April 30, 2019 11:24 AM
Register today for the 2019 FOP Family Gathering!
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