IFOPA Leadership Develops Guidelines for Engaging Pharmaceutical Companies

New document is intended to define a preferred partnership approach and ensure IFOPA’s independence as a patient organization

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Yahtzee is a Good Friend

Miriam Rocke’s service dog fills several roles in her life

“He’s almost 7, but he still acts like a puppy,” says Miriam Rocke. “He does that ‘I have something in my mouth’ walk when he wants to show off.”

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IFOPA to Host Midwest Family Gathering

Forging Our Path: Connecting Patients, Clinicians and Families 


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Letter Writing Campaign in honor of Natalie

Effective grassroots fundraising

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Celebrating One Year of Making a Difference

The FOP Registry is celebrating one year of making a difference today!

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IFOPA's Support of Clinical Trials

A Message about the IFOPA's Support for Clinical Trials

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An Update on FOP Drug Development: News from the FOP Italia Annual Meeting

Summary from the IFOPA Research Committee

The FOP research landscape is evolving at a rapid pace in many wonderful ways. Global efforts to develop therapies for FOP are stronger than ever among academic and biopharmaceutical teams. The IFOPA works continuously to monitor and support these efforts, serve as an advocate for the FOP community, and inform you of progress whenever possible.

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IFOPA Welcomes New Executive Director

Exciting News!

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