IFOPA News - IFOPA - International Fibrodysplasia Ossificans Progressiva Association

IFOPA News

A New Chapter for the FOP Registry

Posted by · April 30, 2026 4:24 PM

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Behind the Scenes: A Conversation with Filmmaker Dana Garrett

Posted by · April 21, 2026 11:46 AM

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Honoring the Journey that Brought Us Here

Posted by · April 02, 2026 10:26 AM

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Never Alone: A Song Born from Hope at the FOP Family Gathering

Posted by · March 24, 2026 4:25 PM

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Journey to Discovery Documentary Series: The Story Behind the Breakthrough

Posted by · March 17, 2026 6:06 PM

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Turn your car into hope: One mother’s story behind her vehicle donation

Posted by · March 16, 2026 2:27 PM

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Rare Disease Day 2026: Celebrating Advocacy Around the World

Posted by · March 05, 2026 11:22 AM

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Finding Her Voice

Posted by · March 05, 2026 10:21 AM

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Plan Now, Make an Impact Later

Posted by · February 23, 2026 5:08 PM

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Ten Years at IFOPA: Reflections on Hope, Resilience, and Joy

Posted by · February 11, 2026 10:55 AM

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