IFOPA News

Transition to Adulthood Webinar

Join us for the Transition to Adulthood Webinar

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2019 FOP Family Gathering Registration & Wait List Now Open

Register today for the 2019 FOP Family Gathering!

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Disney Accessibility and Planning Webinar

Register Now for the May Webinar - Disney Accessibility and Planning

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New Biobank Generates Excitement for Research

“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”

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High School Club in South Korea Sending Support to the FOP Community

Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.

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We're Grateful for our FOP Registry Sponsors

We are very pleased to announce the IFOPA has secured FOP Registry sponsorship! 

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New Friends of the IFOPA Busy Spreading FOP Awareness

"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."

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An Intro to Resiliency Webinar

Join us for the Intro to Resiliency Webinar

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FOP Mouse Model Now Available to Researchers

The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.

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The Quality of L.I.F.E. Awards Receive a Transformational Donation

A gift from Dr. Frederick S. Kaplan renames the awards as The Harold & Elaine Kaplan Quality of L.I.F.E. Awards

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