IFOPA News

Million Dollar Bike Ride Fundraising Totals Are In

Team#cureFOP raises over $79,000 for New FOP Research Grants in the 2019 Million Dollar Bike Ride 

Read more Share

Natural History Study Data Shared With The FOP Registry

Data sharing benefits the FOP community

Read more Share

New This Year at the 2019 FOP Family Gathering

Here's a sneak peak at what's new at the 2019 Family Gathering!

Read more Share

FOP Registry Insights Shared at the RARE Drug Development Symposium

Registry participation is encouraged to help advance FOP research

Read more Share

For One Rare Boy

Kelly Griego competes to raise FOP awareness and support the Wallace family

Read more Share

Middle Schoolers Make a Difference for FOP Families

Congrats to Team Sugar Rush for winning Destination Imagination regionals and state. Thank you for raising awareness of FOP!

Read more Share

Two New Recorded Webinars Available on ifopa.org

Watch and Learn

Read more Share

IFOPA Resilient Living Update

The IFOPA's Resilient Living Program launches thanks to RARE Patient Impact Grant

Read more Share

Transition to Adult Health Care Provider Webinar

Join us for the Transition to Adult Health Care Provider Webinar

Read more Share

2019 FOP Family Gathering Registration & Wait List Now Open

Register today for the 2019 FOP Family Gathering!

Read more Share

Make a Difference

Donate Connect Fundraise

Already a Member? Sign In

Sign Up for FOP Connection, Our Monthly eNewsletter