IFOPA News

Band from Blueprint Medicines Will Compete in Battle of the Biotech Bands for IFOPA

band2.jpgThe band Semi Good Lookin' will represent Blueprint Medicines at the 2018 Battle of the Biotech Bands (BoBB) on the evening of May 9 in Boston, Massachusetts. The event is an amazing opportunity for biotech and pharmaceutical companies throughout Boston, to partner with architecture, design, and building professionals, for the sake of rocking out and raising money for very worthy organizations. 

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The IFOPA Celebrates the Second Year of the FOP Registry

2017 FOP Registry Annual Report

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Making Childhood the Top Priority

Learning to adjust

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New Fundraising Video Available for FOP Fundraisers

Watch, Share, Raise Funds

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Rare Disease Day 2018 - 4.5 Days of Research Funded!

Giving hope to the community

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Alex Rodriguez Talks Sharing, Studying…and Serious Baking

“It’s So Helpful to Share Tips for Adaptations and Accommodations…”

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Serving the FOP Community—IFOPA Board Meeting Wrap Up

by Amy Gordon, IFOPA Board Chair

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Team #cureFOP to Ride in the Million Dollar Bike Ride

Don't miss this opportunity to raise funds for a new FOP research grant!

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Big Dreams, Lofty Ambitions

Claudia Cabrera continues to look towards the future

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The IFOPA Celebrates 10th Anniversary of International President’s Council

Connecting the Global FOP Community for 10 Years

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