Follow Your Passion

“If you don’t love what you do, don’t do it.”

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2018 Family Gathering Preview

Registration closes Monday, October 22

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An Artful Life

Raising awareness and having fun in the process

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The Right Fit

Building a meaningful career

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Nick Mahler’s Colorful life with FOP

Overcoming obstacles and living life to the fullest

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ACT for FOP Grant Program

Request for applications now open

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Double Your Gift on FOP Awareness Day

IFOPA_shirtdesign_ART2color.pngInternational FOP Awareness Day is Monday, April 23, 2018. Generous friends of the IFOPA have agreed to help us raise $60,000 throughout the month of April in honor of FOP Awareness. They will match every dollar we receive—up to $30,000! But we must raise $30,000 to be eligible for the match.

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SAVE THE DATE for the 2018 FOP Family Gathering

FOPFamilyGathering2018_BaltimoreFNL.jpgWe are excited to announce that the 2018 FOP Family Gathering will be held Nov. 16-18 in Baltimore, Maryland. This is the first time an FOP meeting for families has been held in the Northeast since the year 2000. We hope you will join us. 

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Two Upcoming Webinars on Clinical Trials

IFOPA_Webinars.jpgAfter many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinars on each of these trials (please register for each separately). 

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ABLE Accounts Webinar

IFOPA_Webinars.jpgABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).

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