Posted by Merritt Neil · April 29, 2019 11:56 AM
Register Now for the May Webinar - Disney Accessibility and Planning
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Posted by Merritt Neil · April 22, 2019 9:20 AM
“The IFOPA’s FOP Biobank is a wonderful resource and asset for the FOP research community”
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Posted by Merritt Neil · April 18, 2019 7:27 PM
Inspired by the success of the Ice Bucket Challenge a high school club in South Korea is using an interest in rare diseases to raise awareness and funds for FOP research.
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Posted by Merritt Neil · April 18, 2019 2:51 PM
We are very pleased to announce the IFOPA has secured FOP Registry sponsorship!
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Posted by Merritt Neil · April 02, 2019 10:31 AM
"I wanted to know why medical professionals were not aware of such a severe medical condition, despite the fact it is so rare."
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Posted by Merritt Neil · March 20, 2019 3:49 PM
Join us for the Intro to Resiliency Webinar
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Posted by Merritt Neil · March 20, 2019 2:09 PM
The IFOPA is pleased to announce that it is now taking requests from researchers worldwide for its FOP mouse model.
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Posted by Merritt Neil · March 19, 2019 4:29 PM
A gift from Dr. Frederick S. Kaplan renames the awards as The Harold & Elaine Kaplan Quality of L.I.F.E. Awards
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Posted by Merritt Neil · March 11, 2019 11:14 AM
Together, we did it!
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Posted by Merritt Neil · March 06, 2019 11:40 AM
"I hope that my life experiences can make someone else’s journey a little easier.”
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