Registration closes Monday, October 22

Raising awareness and having fun in the process

Building a meaningful career

Overcoming obstacles and living life to the fullest

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International FOP Awareness Day is Monday, April 23, 2018. Generous friends of the IFOPA have agreed to help us raise $60,000 throughout the month of April in honor of FOP Awareness. They will match every dollar we receive—up to $30,000! But we must raise $30,000 to be eligible for the match.

We are excited to announce that the 2018 FOP Family Gathering will be held Nov. 16-18 in Baltimore, Maryland. This is the first time an FOP meeting for families has been held in the Northeast since the year 2000. We hope you will join us. 

After many years of successful basic and translational research, we have begun an important and exciting era of clinical trials for FOP. There are currently two FOP clinical trials actively recruiting patients. You're invited to the IFOPA webinars on each of these trials (please register for each separately). 

ABLE accounts are tax-advantaged savings accounts that have the potential to significantly increase the independence and quality of life of individuals with disabilities without jeopardizing benefits such as Medicaid and Supplemental Security Income (SSI).

Making an impact one fundraiser at a time