When an individual is diagnosed with FOP, the whole family experiences the impact of the diagnosis. The IFOPA aims to provide programming to support the entire family unit. As our Family Services programs grow, we look forward to continuing to recognize the sibling relationship and provide resources geared towards supporting our siblings of all ages.

In order to do this, we need to create a database of siblings in the FOP community. Please email Hope Newport, Family Services Manager, at [email protected] with the sibling’s name, whether they are an adult or 17 & under, mailing address and an email (email for adults only). Thank you for helping us connect to and serve siblings!

If you have received a Sibling Day mailing in the past or have previously submitted your information, you're already on our list and we look forward to connecting with you soon!